Friday, June 25, 2010

Where to Buy "Invisible" -- a MUST SEE film for family and friends!

The NOVA CFS/ME Support Group is very large in membership.  Let's hope you get many, many orders for your fine documentary film from Elly's annct.  She works hard to keep the Support Group going.  I had to laugh at the line in the film that quoted someone else who said he/she was too tired to attend support group meetings.  That's me, as well.   Elly is very good to keep in touch with so many of us by e-mail.
----- Original Message -----
From: Elly
Subject: [CFSupport] New Film: "Invisible" - How to Buy it, See it at our Next Meeting


Meeting Alert: At our July 17, 2010,  2-4 pm NOVA meeting in Chantilly, VA, we will be watching a DVD called "Invisible" about people with CFS, ME, FMS, CFIDS.

Thanks to CFSupport member Carol O for writing the producers and getting us a copy. 
From the letter to me from Rik Carlson and Michael Thurston of the VT CFIDS Association (

"Elly: It is our great pleasure to present with your complimentary copy of  INVISIBLE. We ask that you show and share INVISIBLE with those to whom it will make a difference. INVISIBLE addresses the misunderstanding that Chronic Fatigue Syndrome is the product of an overworked imagination or even a deliberate act of behavior. We are forever amazed that such a misunderstanding even exists. 

INVISIBLE examines how this hideous illness is denied legitimacy, causing the properties of CFS to become exacerbated and prolonged. INVISIBLE informs how social environmets and family structures are destroyed as a result. In many cases, lack of legitimacy becomes far worse and more damaging than simply being terribly sick.

A physician loaned a pre-release version of INVISIBLE to a patient and she in turn showed it to her family as a group. Her report back says it all. 'Not only do they now get it, but they treat me differently."

That's the power of INVISIBLE. It's a film that works.
INVISIBLE provides us that rare opportunity to improve lives, one at a time.
Thank you, Elly, for helping us do that."

Here are more details, where to buy it for yourself ($19.95), reviews.

ABOUT THE MOVIE (From the back of the DVD cover:)

"The film is powerful, very powerful."
Imagine what it's like to be so sick you cannot function.
Imagine there is no known pathology for your illness, only symptoms.
Imagine you are too weak to find your own voice...and because you are silent and confused, your physician says "it's all in your head".
Because your illness is invisible, you disappear.
INVISIBLE gives voice to a select group of Vermonters who are gravely ill, and until now, have been out of sight. You will hear first person accounts from your Vermont neighbors as they talk about living with Chronic Fatigue Syndrome, CFIDS, Fibromyalgia, or Myalgic Encephalomyelitis, the disease with a thousand names and no known cause or cure.
You will hear the devastating impact this illness wields, not only for those who suffer the symptoms, but for those who are left trying to understand what their loved ones are experiencing. This is a film for millions of people around the globe from your Vermont neighbors around the corner...tenacious Vermont neighbors who struggle against unimaginable odds to make their voices heard.
They are just like us...except they got sick...
and they are tired of being INVISIBLE.

REACTION, What people are saying:


INVISIBLE, in an early draft form, made its debut at the 9th International Association for Chronic Fatigue Syndrome and ME Conference in Reno, Nevada during the Patient's Session on March 12, 2009. It was widely reviewed as the first film of its kind to tell the Chronic Fatigue story from the patient's point of view, and was lauded for its ability to lend credibility to those suffering Chronic Fatigue.


A doctor in Vermont placed a draft copy of INVISIBLE in a lending library she maintains in her office. One patient borrowed the film, and upon bringing it back told the doctor: "I made my family sit down and watch INVISIBLE with me. They treat me differently, now."

P.A.N.D.O.R.A., headquartered in Florida, screened a draft version of INVISIBLE in Fort Lauderdale on International CFIDS awareness day, May 12, 2009. Again, the response was enthusiastic and uniform: INVISIBLE tells it the way it should be told.

My congratulations are way over due! INVISIBLE is well organized, complete, germane, sensitive, and professional!! I hope someday I will actually be well enough to offer good, sensitive medical care to some of our own. (Terry Nauman, MD, CFIDS sufferer)

WOW!  The film is powerful, very powerful. It is beautifully photographed. The 'cast' does a terrific job...a very difficult topic in a well informed and wonderfully executed manner. (Ruth Friedman)

I'm here in Reno at the International Association for Chronic Fatigue Syndrome with a whole bunch of people watching this great movie called "Invisible."
"Invisible" ... And the reality that patients do not have doctors, and that doctors need testing and treatment blueprints. Patients saying over and over again "nobody has any idea what to do with this disease." One of our group suggested that this needs to be required viewing at every medical school in the country.
When I saw "Invisible" it was clear that my Bob is like Rik's Barbara. It really makes a difference coping with the disease to have support in the family. The response from a room of about 500 people in Reno was a lot of laughter and recognition - and then long applause. (Mary Schweitzer)

Perhaps a couple members of a local support group could offer to bring the DVD [to the local medical school] and answer questions, to show with these stories that we are not lazy people looking for an excuse to lounge on the couch, but "I was a marathoner", "I was a rising political star"; we had everything to lose and nothing to gain by taking to our beds, and let them see that by the end of the session, this woman who looked normal at the start is now ready to curl up and nap on the floor before she can make it back to her car. (Karen M. Campbell, Founder


Rik, you always just amaze me. You have done so much for the CFIDS etc. community, not just in Vermont but everywhere. Your book and your Pandora winning film, all the work you have done toward informing MDs and on and on. I want to compliment you on all the work you do for all of us who are so isolated. And I also wanted to put myself on the list to be alerted when Invisible is released. I am very anxious to see it and probably donate a copy to my local library and the library I once worked for as well. Again, thank you Rik. (Taffy Todd, passed away on April 28, 2009)

Superbly made. Great advocacy. Not shrill. Quite an accomplishment. (Phil Carlson)

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