Friday, March 23, 2018

Finally, you won't be told "wrong diagnosis"

The American ME and CFS Society, a 501 (c)(3) nonprofit, has launched a Crowdrise campaign to raise funds for emergency aid for patients in financial crisis. Many patients are disabled and unable to work. Assistance at the right time can go a long way. AMMES' mission is to help patients and their families in practical ways. This is one of them. Please donate what you can!
If AMMES manages to raise 3000 dollars through this campaign, we will be eligible for a Community grant of 25,000 dollars. All of this grant will go into our crisis fund.
This is the description that appears on Crowdrise:
"Between 836,000 and 2.5 million Americans suffer from ME/CFS. One quarter of these patients are severely ill, and are either bedbound or housebound. Severely ill patients are unable to work, and many are denied disability. The financial crisis generated by a loss of income coupled with rising costs of medical care can force patients to forego necessary care and medication. In some cases, patients may even lose their homes and end up living in cars. In order to assist patients in need, AMMES is setting up a crisis fund to provide one-time grants to patients for specific needs. The funds can be used to purchase a wheelchair, pay a medical bill, hire home care, secure adequate housing, and other basic needs. All applicants will be required to provide written medical confirmation of their diagnosis, proof of financial need, and document the specific purpose of the grant. Where possible, a phone interview will be conducted. (Some severely ill patients cannot speak.) Any patient within the United States and its territories is eligible."