Sunday, January 7, 2018

Farewell – A Last Post from Anne Örtegren

A ME/CFS patient explains her assisted suicide

http://lobel.nu/anne.html


Unrest -- patients demanding justice

"This is a much more serious disease than many of the other things that people are worried about. It's more common than MS, it's more common than Parkinson's disease, it's more common than Aids. This is probably the last major disease that we know so little about. And it's because of its nature that it's been hidden. The severe patients are often just in their home being looked after by someone and no one knows they exist. But it can get very severe, people have tried to make some measures in terms of debilitating illness, it's generally viewed as worse than many other diseases that have been ranked in terms of quality of life.''

http://www.independent.co.uk/news/long_reads/why-patients-me-demanding-justice-millions-missing-chronic-fatigue-illness-disease-a8133616.html