The newest research about living with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (ME/CFS)/fibromyalgia, with personal observations
(the most pertinent parts of long articles will be highlighted for the reader)
On March 4, 1988, I was diagnosed with Post-Viral Syndrome, which CDC soon decreed had to be referred to by the silly name "Chronic Fatigue Syndrome". My symptoms definitely traced back to a severe flu-like illness with a 105 fever for several days in mid-February 1987.
Despite relapses and increasing symptoms, I continued to work full-time as a legal secretary/paralegal -- even when I had no Quality of Life because I had to spend every non-working hour in bed so I could work the next day -- until February 2000, when months of severe sleep disturbance and ever-increasing symptoms (due to sleeping 2 hours or less a night due to the pain) cost me my job.
The doctors and judge didn't want to hear about failed attempts to return to work; they just assumed I don't want to work. "Don't confuse me with facts, my mind is already made up."
Since ADA will not force an employer to provide the accommodations I need, I started my own business so I could lie down whenever I needed to. I do proofreading and editing from home.
Visit www.CFSfacts.org or CFS Facts at YahooGroups or on Facebook if you want to learn the truth behind the myths.
We are (or will be) available in 190 countries around the world and twenty languages. This means even more people can see the film and join the movement for equal access to research, treatment and care.
But being on Netflix doesn't guarantee views. And watching Unrest is only the beginning. To transform awareness into action, we need to organize! Here are three ways you can help.
SHARE ON SOCIAL
Shout our Netflix launch from the rooftops. Share on your social networks and let's get our stories seen and heard! You can find images and sample tweets in our social press kit.
WATCH AND LEAVE A REVIEW
Watch Unrest again or leave a review. We'd love to get Unrest into Netflix's "Trending Now" section today so casual browsers can stumble upon it and take a look. Views and reviews help. We can do it – with your help!
ORGANIZE A HOUSE PARTY
There's still time to sign up and organize a house party to educate friends and family, and take action together. And now with Unrest's availability on Netflix, it's never been easier!
Don't have Netflix? US residents can still watch Unrest for free on PBS's Independent Lens website through January 22nd or go here for even more ways to watch.
We've come so far together – and this is JUST the beginning. Thank you for your support, your sharing, and your activism. Together, we can change the world.
Jennifer Brea & The Unrest Team
P.S. - Are you ready to show everyone it's #TimeForUnrest by wearing a shirt, hoodie, button, or sporting a tote? Why not grab a poster while you're at it? But hurry-- Unrestmerchandise is selling quick! All proceeds from our store help to sustain our global campaign.