Tuesday, September 19, 2017

Changing Hearts and Minds

Changing Hearts and Minds: A Review of Unrest

Five years in the making, the award winning film Unrest whichJen Brea
created to portray the real costs and struggles ME/CFS patients face,
is finally here. With showtimes starting next week, now is the time to
see and spread the news regarding this raw, poignant and powerful look
at ME/CFS.

Check out a review of Unrest and find out how you can see it in


Things to Do When You’re Mostly Housebound

"Things to Do When You're Mostly Housebound

For those who are mostly housebound, living well can be a challenge."

Toni Bernhard J.D.

(August 09, 2017)


From "Sick" to "Disabled"

From "sick" to "disabled": my own journey

Posted on June 13, 2017
Author Catherine Hale

Catherine Hale looks back at how half a lifetime of chronic illness
slowly changed her understanding of "disability".


She has a chronic illness [ME].

She discusses wondering how the "social model of disability" related
to her. She discusses how her mindset has changed somewhat over the

"How much was my own recovery-obsessed mindset holding me back from
demanding that society accept and include me just as I am?"

* * *
I can tell you that it took a long time for me to accept that I was disabled.  Too many outside forces insisting that if I just tried harder, looked again for a doctor with the right magic pills, I'd be well again.  As if admitting that I'm disabled was somehow a failure instead of accepting reality.
I finally was sent to a consulting doctor who made it clear that the years of bad doctoring, ignoring physical symptoms and treating me for psych problems that I didn't have, refusing to give me either pain pills or sleeping pills so that I could get more than an hour or two of sleep before the pain woke me up, at best I might work half-time, but the physical damage from that medical neglect was permanent and too severe to ever return to full-time work.  That was what shook me up enough to recognize I was permanently disabled.

Coins for a Cure

From: Open Medicine Foundation


Coins For A Cure was inspired by one patient's hope for a cure. Eimear
Forde's family has been going door-to-door and all around her town in
Ireland collecting donations to support OMF"s research. Together with
her children, they share the message of hope by using a basket of

One of Eimear's friends came to her home and emptied an entire piggy
bank full of coins into her collection bucket. It was a lot of coins
and totaled up to 50 Euros. This inspired Eimear and her family to
start collecting coins from family, friends, neighbors and local
businesses. In their first "Coins For A Cure" collection, Eimear
donated over $600 USD. Eimear said, "Some of the donations are small
but it all adds up!! We have to find some solutions to this awful
disease, I want to do all I can to help."

We invite you to join Eimear and ask your family and friends to donate
their spare change and to empty their piggy banks. Invite local
businesses to put a collection jar by their registers. You can get
your company, group, church or organization involved too. Let's make
this an international Team OMF collaborative effort. Join the action
and get your community involved.

Millions of patients around the world are in need of a treatment and a
cure. Your coins are truly giving hope to patients and their families,
just like Eimear's. Be a part of Coins For A Cure and help accelerate
research to help millions of patients.

Donate Now

Please share our Coins For A Cure campaign with your friends.
Working together, we will find answers!