Tuesday, September 19, 2017

From "Sick" to "Disabled"

From "sick" to "disabled": my own journey

Posted on June 13, 2017
Author Catherine Hale

Catherine Hale looks back at how half a lifetime of chronic illness
slowly changed her understanding of "disability".


She has a chronic illness [ME].

She discusses wondering how the "social model of disability" related
to her. She discusses how her mindset has changed somewhat over the

"How much was my own recovery-obsessed mindset holding me back from
demanding that society accept and include me just as I am?"

* * *
I can tell you that it took a long time for me to accept that I was disabled.  Too many outside forces insisting that if I just tried harder, looked again for a doctor with the right magic pills, I'd be well again.  As if admitting that I'm disabled was somehow a failure instead of accepting reality.
I finally was sent to a consulting doctor who made it clear that the years of bad doctoring, ignoring physical symptoms and treating me for psych problems that I didn't have, refusing to give me either pain pills or sleeping pills so that I could get more than an hour or two of sleep before the pain woke me up, at best I might work half-time, but the physical damage from that medical neglect was permanent and too severe to ever return to full-time work.  That was what shook me up enough to recognize I was permanently disabled.

1 comment:

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