Wednesday, September 7, 2016

How anti-social-media sentiment hurts the disabled

Naomi Chainey shares her experience with chronic fatigue syndrome and
how social media is connecting those living with disabilities like
never before.
Those who take their potential to interact with the world for granted (the default able-bodied audience) are less likely to interpret Kuczynski's periscope as a lifeline. In actuality, Kuczynski seems to be depicting social media as a barrier to true participation.
... As fellow ME/CFSer Samantha Whitehead put it "Facebook has been such a lifeline for me. Not only because disability has curtailed my socialising, but also because I was able to maintain friendships despite being physically and socially isolated by an abusive partner."
* * *
These days, most of my good friends are from various ME/CFS support groups.  If I mention among able-bodied people that I managed to feed the cats AND myself breakfast before going back to bed, there are comments about being lazy.  In support groups, people understand what an accomplishment that is.  They recognize that there were times when I barely got the cats fed before collapsing.  I get cheers for doing as much as I do, rather than lectures because I'm not doing more.