One of Simmaron's 2 spinal fluid studies was published yesterday, showing a significant decrease in the cytokine IL-10 in spinal fluid of ME/CFS patients versus healthy controls. IL-10 moderates inflammation and autoimmune responses. The study was led by Dr. Sonya Marshall-Gradisnik of Griffith University in Australia and Dr. Daniel Peterson in Nevada. Please support Simmaron so we can keep the science coming!
Saturday, March 7, 2015
Letters to the Editor:
The Reality of Chronic Fatigue Syndrome - NYTimes.com
Friday, March 6, 2015
Thursday, March 5, 2015
Wednesday, March 4, 2015
In a study published last week in the journal Science Advances, researchers found that people with chronic-fatigue syndrome showed measurable differences in their immune systems, a discovery that may enable doctors to diagnose the disease more quickly down the road—and one that sheds more light on its still-mysterious biological origins.
"It's been a highly stigmatized disorder. There's been many naysayers that don't even believe it's a biological disorder," said Mady Hornig, the lead researcher and a professor of epidemiology at Columbia University's Mailman School of Public Health.
... The paper is the second in recent months to describe physical differences linked to the disease: In October, researchers at Stanford University observed differences in the white matter of the brains of patients with chronic-fatigue syndrome, a finding that Drew Foster described in The Atlantic as "a social-legitimacy jackpot."
... the National Institutes of Health have budgeted $5 million for research into chronic-fatigue syndrome for 2015, one of the smallest amounts on its itemized list of projected spending. (For context, headaches were allotted $24 million, and multiple sclerosis $103 million.)
So, here we are nearly 3 decades later, and finally there's something that looks like forward progress, including the information that the early years of the disease look very different from the later years. Any hope for an "easy cure" is gone – I've been sick a lot longer than the 5-year cutoff that researchers have been finding. At this point, all I can hope for is that a new name finally gives it enough credibility that I can qualify for some sort of assistance, primarily volunteer drivers and cleaners who are trained to work with the disabled and not make things worse by creating heavy boxes "for you to put away!" that are placed in front of the doors and drawers I would have to open in order to put those things away.