Friday, January 30, 2015

“Cuckoo For Cocoa Puffs?” Accepted By 17 Medical Journals

As reported by one of the major problems with this entire industry of medical publication is that while some of the journals might sound like credible outlets, they actually fall way short of any sort of reasonable quality standards...  This is not only a disservice to the public, but it is an outright deception because it deliberately muddies the waters and makes it extremely difficult for a person to determine which journals are reputable and which ones are worthless. Not to mention that pseudoscientists, alternative medical proponents, and other unscrupulous individuals will point to articles published in worthless journals as evidence to support their ideas and positions.

Thursday, January 29, 2015

Health insurers may be finding new ways to discriminate

In a discrimination complaint filed with the Department of Health and Human Services' civil rights division last year, two patient advocacy groups alleged that four Florida insurers selling plans on ACA exchanges were requiring HIV patients to pay up to 50 percent of the cost of HIV medications, even for generic versions, which should in theory be cheaper. They also asked federal regulators to investigate whether this practice was happening more broadly across the country.

Looking Back: The Biggest, Best, Least and Most in ME/CFS/FM in 2014

Cort saves me the time of doing my own list:
Biggest Media Splash – Zeineh's brain MRI findings prompt the media to report that Chronic Fatigue Syndrome is Real – Stanford Brain Study Sparks Media Reports – "Chronic Fatigue Syndrome is Real" ... Zeineh's finding problems in one very small part of the brain in almost all the ME/CFS patients in his study and none of the healthy controls sparks media reports that ME/CFS is real, and suggests this Stanford researcher may have found a brain biomarker

Best Reminder That Chronic Fatigue Syndrome is Different… Very DifferentThe Lights' exercise study showing that multiple sclerosis patients are VERY fatigued but tolerate exercise pretty well, while ME/CFS patients are a bit less fatigued but fall apart when they exercise – demonstrates there's more to fatigue than "fatigue". 
Dane Cook's brain imaging study shows that not only can you visibly see ME/CFS patients brains get worse after rigorous exercise but that they fall apart on post-exercise cognitive tests as well
Second Most Inflammatory Result – Gene expression study at Stanford (unpublished) indicates that the gene activity in chronic fatigue syndrome suggests it's most like "systemic inflammatory syndrome" and other inflammatory disorders.

74% suspected their diagnosis had led them to receive substandard care. Should You Tell Your Doctor You Have Chronic Fatigue Syndrome or Fibromyalgia?
Read Cort's whole list:
Looking Back: The Biggest, Best, Least and Most in ME/CFS and Fibromyalgia in 2014