The newest research about living with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (ME/CFS)/fibromyalgia, with personal observations
(the most pertinent parts of long articles will be highlighted for the reader)
On March 4, 1988, I was diagnosed with Post-Viral Syndrome, which CDC soon decreed had to be referred to by the silly name "Chronic Fatigue Syndrome". My symptoms definitely traced back to a severe flu-like illness with a 105 fever for several days in mid-February 1987.
Despite relapses and increasing symptoms, I continued to work full-time as a legal secretary/paralegal -- even when I had no Quality of Life because I had to spend every non-working hour in bed so I could work the next day -- until February 2000, when months of severe sleep disturbance and ever-increasing symptoms (due to sleeping 2 hours or less a night due to the pain) cost me my job.
The doctors and judge didn't want to hear about failed attempts to return to work; they just assumed I don't want to work. "Don't confuse me with facts, my mind is already made up."
Since ADA will not force an employer to provide the accommodations I need, I started my own business so I could lie down whenever I needed to. I do proofreading and editing from home.
Visit www.CFSfacts.org or CFS Facts at YahooGroups or on Facebook if you want to learn the truth behind the myths.
neuroscientist Professor Chris Chambers of Cardiff University, whotweeted, "If @KingsCollegeLon is seeking to do itself 'reputational damage', hiding trial data shd do the job", and leading University of Virginia research psychologist Brian Nosek, whotweeted, "King's College data sharing refusal and rationale are antithetical to science". Dr Nosek is the Executive Director of theCenter for Open Science.
It is possible to leavecommentson the PLOS ONE site in relation to the PACE paper. Professor Coyne has posted a comment about the study authors' refusal to share their data and in response, one patient wrote, "Patients are relying on PLOS One to be the first scientific institution to stand up for good scientific practice in the context of the PACE trial… Patients don't risk their health in clinical trials so that study authors can misrepresent the results and prevent independent researchers from investigating them."