The newest research about living with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (ME/CFS)/fibromyalgia, with personal observations
(the most pertinent parts of long articles will be highlighted for the reader)
On March 4, 1988, I was diagnosed with Post-Viral Syndrome, which CDC soon decreed had to be referred to by the silly name "Chronic Fatigue Syndrome". My symptoms definitely traced back to a severe flu-like illness with a 105 fever for several days in mid-February 1987.
Despite relapses and increasing symptoms, I continued to work full-time as a legal secretary/paralegal -- even when I had no Quality of Life because I had to spend every non-working hour in bed so I could work the next day -- until February 2000, when months of severe sleep disturbance and ever-increasing symptoms (due to sleeping 2 hours or less a night due to the pain) cost me my job.
The doctors and judge didn't want to hear about failed attempts to return to work; they just assumed I don't want to work. "Don't confuse me with facts, my mind is already made up."
Since ADA will not force an employer to provide the accommodations I need, I started my own business so I could lie down whenever I needed to. I do proofreading and editing from home.
Visit www.CFSfacts.org or CFS Facts at YahooGroups or on Facebook if you want to learn the truth behind the myths.
We here plenty of things of whatnotto say to an ill person, but sometimes this leaves our friends and loved ones saying nothing at all. They can begin to feel like everything they say is wrong, so maybe they should just stop talking.
There are, however, some words we who are ill long to hear and they can stand out when one is inundated with things they'd prefer not to hear. We hope this gives people an idea of some small words that make a difference.
I KNOW every one of my friends and neighbors goes grocery shopping. Would it really be that difficult for one of them to pick up an item or two for me? Or are they assuming that I would not reimburse them for what they buy?