Saturday, January 3, 2015

Why keep telling the story?

There are plenty of people who tell me to "shut up and move on" -- but there are also plenty of new victims who need to hear that you can survive medical abuse.  I won't shut up until the last patient has a doctor who believes she is physically ill.

Wednesday, December 31, 2014

Laura Hillenbrand and CFS

Links to where Laura Hillenbrand has spoken/written about having CFS
Thank you, Laura, for being the face of CFS and speaking so eloquently about it.

Tuesday, December 30, 2014

Ian Hodgson on chronic fatigue syndrome and vitamin D


 "ME/CFS occurs in countries where there is no Lyme disease. The confusion arises because ME/CFS is diagnosed only by symptoms and the symptoms can be similar to other pathologies. ... I can confidently say that ME/CFS is NOT Lyme disease."

Sunday, December 28, 2014

Laura Hillenbrand on CBS "Face the Nation"

The very first sentence was "tell me about your disease".  Laura gave a good concise description of CFS, including that it's also called Myalgic Encephalomyelitis, how it affects her, that she's at times been too sick to even leave the house even once for 2 years at a time....

Whereas NBC last week never even mentioned the name of Laura's condition in an hour-long program, CBS led off with it.

Link to the video: