Saturday, January 25, 2014

Oxygen, Exercise, and CFS

fulltext- http://www.translational-medicine.com/content/pdf/1479-5876-12-20.pdf

J Transl Med. 2014 Jan 23;12(1):20. [Epub ahead of print]
Decreased oxygen extraction during cardiopulmonary exercise test in
patients with chronic fatigue syndrome.
Vermeulen RC, Vermeulen van Eck IW.

Abstract

BACKGROUND: The insufficient metabolic adaptation to exercise in
Chronic Fatigue Syndrome (CFS) is still being debated and poorly
understood.

METHODS: We analysed the cardiopulmonary exercise tests of CFS
patients, idiopathic chronic fatigue (CFI) patients and healthy
visitors. Continuous non-invasive measurement of the cardiac output by
Nexfin(R) (BMEYE B.V. Amsterdam, the Netherlands) was added to the
cardiopulmonary exercise tests. The peak oxygen extraction by muscle
cells and the increase of cardiac output relative to the increase of
oxygen uptake (DeltaQ'/DeltaV'O2) were measured, calculated from the
cardiac output and the oxygen uptake during incremental exercise.

RESULTS: The peak oxygen extraction by muscle cells was 10.83 +/- 2.80
ml/100ml in 178 CFS women, 11.62 +/- 2.90 ml/100ml in 172 CFI, and
13.45 +/- 2.72 ml/100ml in 11 healthy women (ANOVA: P=0.001), 13.66
+/- 3.31ml/100ml in 25 CFS men, 14.63 +/- 4.38 ml/100ml in 51 CFI, and
19.52 +/- 6.53 ml/100ml in 7 healthy men (ANOVA: P=0.008).The
DeltaQ'/DeltaV'O2 was > 6 L/L (normal DeltaQ'/DeltaV'O2 [almost equal
to] 5 L/L) in 70% of the patients and in 22% of the healthy group.

CONCLUSION: Low oxygen uptake by muscle cells causes exercise
intolerance in a majority of CFS patients, indicating insufficient
metabolic adaptation to incremental exercise. The high increase of the
cardiac output relative to the increase of oxygen uptake argues
against deconditioning as a cause for physical impairment in these
patients.

PMID: 24456560 [PubMed - as supplied by publisher]

Friday, January 24, 2014

Power of Positive Thinking debunked

Power of Positive Thinking debunked.  All the positive thinking in the world has not cured me, did not make it possible for me to tell my body to do what it was too damaged to do, and did not get me the help I desperately needed. 
 
Visualizing myself out playing at Disneyland didn't stop my body from passing out every time I sat up, making clear that I wasn't even going to make it to the airport, much less through a day at the park, without someone calling an ambulance. 
 
And here's the proof that "thinking happy thoughts" is bullshit. 
 
 

Thursday, January 23, 2014

It Has Been a Half Century Since the War on Poverty. Have We Made Progress?

 
(written by my friend Daniel L. Berek)
 
With one in five children living in poverty and one in ten in extreme poverty, "the United States is still not a fair playing field for millions of children afflicted by preventable poverty, homelessness, sickness, poor education, and violence…." 
 
Continues Ms. Edelman, the greatest threat to our society, our well-being, our security comes not from a foreign enemy, but "from our failure, unique among high-income nations, to invest adequately and fairly in the health, education, and sound development of our young."  In addition to lack of health care and poor nutrition, inadequate education and the extremely high rate of incarceration prevent young people, most of them of color, from finding work or being able to enlist in the military.  "If America is to lead in the 21st century, we must reset our economic and moral compass," she adds.
 
* * *
 
A large number of CFS patients are denied Disability benefits, which forces their families into poverty.  Even for those who do eventually succeed at convincing a judge that they have a legitimate physical illness, not something that can be cured by talk therapy (as several judges insisted would get me back to work), SSDI checks are often less than minimum wage, leaving the family in poverty.
 
In many cases, the children were born before the parent became disabled -- it's not an irresponsible choice to have children you can't afford, as some would like you to believe is the only reason a family needs welfare/food stamps.
 
A parent's disability should not cost a child its future.  The children of the poor and disabled should get adequate nutrition, health care, and education regardless of their parents' situation -- the children should not be punished for the perceived "sins of the fathers" (which is the result of those whose moral compass says those who don't work deserve no assistance).  The children of the disabled are especially in need of the ability to earn enough to support a disabled parent, which they cannot do if poor nutrition/health/education leaves them intellectually disadvantaged and suited only for menial low-paying jobs.
 
Children are our future -- let's make sure ALL of them get the best possible start in life.
 

Tuesday, January 21, 2014

15 Home Remedies Based On Ayurveda

 
Home remedies are often as effective -- and safer -- than prescriptions.
 
 

Karina Hansen and Amnesty International

 
This is from the Facebook page Justice for Karina Hansen - They say to please share.  

---------------------------- forwarded -----------------------------

You can use this link to send your letter to Amnesty International. http://www.amnesty.org/en/contact 

International Secretariat at Amnesty International :

My name is (Enter your name).   I live in (add your city/country).  I am writing to you concerning what I believe to be human rights abuses against Karina Hansen in Denmark.  

Karina Hansen is a young woman with myalgic encephalomyelitis (ME), classified as a neurological illness by the World Health Organization in 1969.   She was forcibly removed from her home on Feb. 12, 2013 for treatment she had previously chosen against.  This treatment is believed by many international experts on ME to be detrimental.  You can find more information about ME at http://www.guideline.gov/content.aspx?id=38316&search=cfs

(If you wish, you can insert why you are personally concerned. It can be good for them to know why you are feel moved to write)

Karina's human rights have been systematically stripped away. She now has no say in where she lives, what treatment she receives, what doctors provide treatment,  when and how often her parents can visit her, or access to the lawyer she hired in 2012. Karina ,because of her illness,  has a very difficult time expending the energy to use her cell phone, yet after she was taken she made 26 calls for help until her cell phone died. This included a call to the police.  Karina has made it clear she needs help.

Issues to be addressed regarding Karina Hansen's rights:
1. Karina hired a lawyer in 2012. She no longer has access to this lawyer.

2. Karina gave her parents power of attorney. The state has now appointed Karina a legal guardian she did not choose herself.

3. Karina's parents were denied visitation rights to Karina. It is against the law in Denmark to deny visitation.
 
4. Karina was forcibly removed from her chosen, familial home. They sent 5 policemen, 2 doctors, 2 social workers, and a locksmith to remove one bedbound young woman. 

5. Karina previously said no to this treatment in 2011 and 2012. She continues to say no by telling them "you are killing me" when they subject her to treatment that can be detrimental for a ME patient. 

Contact and other relevant information for Karina Hansen:
-Karina Hansen is being held at Hammel Neurocenter.
Regionshospitalet
Hammel Neurocenter
Volbyvej 15DK - 8450 HammelDänemark
Tel. +45 8762 3300
Fax +45 8762 3307
hammel.neurocenter@rm.dk 
www.neurocenter.dk 

- The doctor in charge of Karina's care is Nils Balle Christiansen of The Research Clinic for Functional Disorders and Psychosomatics.  http://funktionellelidelser.dk/en/

-Karina's parents are Per  and Ketty Hansen and they live in Holstebro,  Denmark.

- You can find detailed information about Karina Hansen and the abuses she is suffering athttps://www.facebook.com/meforeningen.dk?sk=notes .

-Rebecca Hansen, chairman of the ME association Denmark is working with Karina Hansen's family and can be contacted at icerebel62@hotmail.com.

Grassroots action has begun to help Karina Hansen, but we would appreciate guidance and assistance from an experienced human rights organization. I am including links to petitions, videos, and letter writing campaign information so you can see what has been started.  Would please advise us on the best way to fight for Karina's rights? Can you provide assistance to Karina Hansen and her family?

Videos made to raise awareness of Karina Hansen:
1.  http://www.youtube.com/watch?v=Dk3e8IWj7M0
2.  http://www.youtube.com/watch?v=JTkkcvlvYf8

Template and addresses for the letter/email writing campaign:  
Template -
https://www.facebook.com/notes/justice-for-karina-hansen/letter-writing-template-for-denmark-officials/531198773608251
Addresses
https://www.facebook.com/notes/justice-for-karina-hansen/addresses-for-officials-in-denmark-for-the-letter-writing-campaign/531228780271917
https://www.facebook.com/JusticeForKarinaHansen

Petition links:
1. Change.org
http://tinyurl.com/p55nxdp
2. Causes.com
http://tinyurl.com/au3c7t4
3. Ipetition
http://www.ipetitions.com/petition/postcardtokarina/

You can contact Justice For Karina Hansen and learn more information here:
https://www.facebook.com/JusticeForKarinaHansen

Where have Karina's choices gone?  Karina has rights and these rights need to be enforced. As a longstanding bastion for fighting injustice and promoting human rights,  I ask that you assist Karina Hansen and her family.  I appreciate your swift action regarding this matter.

                                                                Sincerely,
                                                                        (your name)