"Almost nobody, except a tabloid headline-writer, says ME is "all in the
mind" these days. So why is there still such a stigma attached to
ME/Chronic Fatigue Syndrome?
In my experience, the stigma gets worse the more severely affected with ME
you are. Now that my illness presents in a moderate form, the treatment I
get from the medical profession is mostly benign neglect. When I was very
severely affected it was a different story: I experienced outright
hostility, open disbelief, accusations of hysteria, attention seeking,
malingering and manipulation. I was very, very ill and yet my poor parents
were shunned by doctors and left to care for me alone."
"To end the stigma of ME and the shocking neglect and even abuse towards
severe ME we have to knock the deconditioning theory on the head once and
for all. We need to change the received wisdom on ME within the medical
profession. It won't be easy but it looks like at last we science on our