was written with May 12 in mind and designed to be shared with
healthies to help them understand. It also mentions The Princess and
ME fundraiser for Invest in ME that is taking place on May 12, along
with The Big Sleep for ME.
She talks about how she regrets she didn't rest more in the early
stages as it likely would have helped her prognosis, something many of
us can relate to.
She talks about how much time she rests and how she has to measure out
the activities she spends her energy on.
Unfortunately, in the early stages, most of us have doctors who try to persuade us that resting so much has made us deconditioned and urge us to exercise more. When you report back that exercising has made you worse, they either accuse you of not wanting to exercise or chirp "no pain, no gain", rather than considering that their advice may be wrong.