I'm organizing a May 12 demonstration in San Francisco in front of the Federal Building. The theme is "30 Years of Neglect." (This is the 30-year anniversary of Incline Village.) To show that this is not a benign illness, we will be holding pictures of people who have died of the disease. We will also read their obituaries.
If you know of anyone (anywhere in world) who has died of ME, and if you have a photo of him or her, would you please email it to me?
If you are in the Bay area and would like to participate in the demo, by all means, get in touch.
Erica Verrillo firstname.lastname@example.org