What would you do, how would you feel, if you saw 26 years of stonewalling instead of progress toward helping you feel better? I see a quarter-century of patients' lives wasted, time we'll never get back. I see friends dying -- some of the disease and some of suicide when they've lost all hope.
The cure rate for cancer in that time frame has gone up exponentially. The cure rate for ME/CFS remains zero. Zip. Nada. Llewellyn King notes: "Physicians who treat ME/CFS have told me that they would rather have cancer than this disease. One epidemiologist said, "With cancer, you are cured or you die. ME/CFS just goes on and on. You live the life of a zombie."
From a physician devoted to treating and researching ME/CFS, this is not only a terrible admission, but also a de facto indictment of the national effort to find a cure, or even a therapy, for alleviating the suffering."
And you think there's a bright side of this that I should be looking at?!