Wednesday, March 26, 2014

2014 IACFS/ME Conference -- Lapp

"if you try to push, it just makes things worse"
 
7-9x more likely to have co-morbidities (IBS, migraine, MCS, gluten sensitivity, etc.)
 
NSRIs, anti-epileptics, each can take pain down 1-2 levels; take them together and you can take it down 4 levels
 
"there's something magical about lying flat"
dedicated rest period, 10-30 minutes, several times a day
lie down, clear your mind (no lists, no phone, no distractions)
 
Lapp uses "energy dollars" concept -- you will pay it back the next day, plus a penalty
 
AVOID sugar, caffeine, alcohol, nutrasweet, and tobacco
 
DO NOT exceed your anerobic threshold, which is very low in CFS patients.  10-12 minutes is the max you can do.
230 minus your age = the maximum heart rate (e.g., 50 years old, 230-50=180)
anerobic threshold is 0.6x that (180 x .6 = 108)
 
cut your activity back by 50% if you become symptomatic
 
ALL THERAPIES PROVIDE MODEST BENEFIT, AT BEST
multivitamin                        B12
D3                                    magnesium
calcium                            DHEA
Carnitine                            NADH
CoQ10                                Lysine
Ribose                                Methylfolate
 
Lapp is always taking new patients in Charlotte, but he's not always covered by insurance
 
 

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