Wednesday, January 15, 2014

Patient's Plan to Educate Doctors on CFS

http://theblueribbonfoundation.org/2014/01/11/patients-plan-to-educate-doctors-on-chronic-fatigue-syndrome/

Patient's Plan to Educate Doctors on Chronic Fatigue Syndrome


A young man is taking on the medical establishment with a plan to
educate medical students about the devastating disease Chronic Fatigue
Syndrome, also known as Myalgic Encephalomyelitis, that is little, or
not understood at all, by most doctors. Ryan Prior, 24, has Chronic
Fatigue Syndrome, which affects about 1 million Americans and 17
million people around the world.

Prior, accompanied by infectious disease researcher Dr. Andreas
Kogelnik, will discuss his plan to tackle the lack of understanding
about Chronic Fatigue Syndrome among doctors by placing medical school
students on a ten-week internship with doctors who have treated the
disease for decades. They will also discuss the pioneering work being
done on Chronic Fatigue Syndrome at Kogelnik's Open Medicine Institute
in Mountain View, CA.

When: January 24, 2014
Where: The National Press Club, 529 14th St., NW, Washington, DC 20045

Speakers: Dr. Andreas Kogelnik, director, the Open Medicine Institute,
Mountain View, CA, expert on Chronic Fatigue Syndrome, and supporter
of the medical internship program for Chronic Fatigue Syndrome.

Ryan Prior, patient and creator of the Blue Ribbon Foundation, based
in Atlanta, GA, which will manage and coordinate the medical intern
program.

Facilitator: Llewellyn King, executive producer and host, "White House
Chronicle" on PBS and columnist, Hearst-New York Times Syndicate

Background: Chronic Fatigue Syndrome has no cure, succumbs to no drug,
and is hard to diagnose because there are no biological markers in
blood or urine. About twice as many women as men are stricken with the
disease and they tend to be more severely incapacitated.

Victims suffer a variety of awful symptoms including fatigue that is
not abated by sleep, joint pain, cognitive difficulty, and the
inability to undertake any physical activity without collapsing
afterwards. Victims are often bedridden in tomb-like rooms – even in
bedroom closets — because of their sensitivity to sound and light.

For most sufferers, it is a disease that dictates bare existence for
the rest of life. Holding a job is difficult or impossible for them;
family and friends often abandon them. Suicide rates are high.

There is a critical lack of doctors who know anything about the
disease, according to Kogelnik. "That is why I am supporting Ryan and
his Blue Ribbon Foundation in their plan to educate medical students
in this critical medical specialty," he said.

Contact: For more information, call Llewellyn King at (202) 441-2703.
To arrange a broadcast interview with either Ryan Prior or Dr. Andreas
Kogelnik, e-mail Llewellyn King at lking@kingpublishing.com.

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