Friday, April 19, 2013

Someone you know ill? Watch what you say, and to whom - Los Angeles Times

"Here are the rules. The person in the center ring can say anything she wants to anyone, anywhere. She can kvetch and complain and whine and moan and curse the heavens and say, "Life is unfair" and "Why me?"
* * *
To those of you who say I'm not allowed to ask those questions about my illness ... read the whole article.  I had good health habits and got sick anyway.  I ate right and exercised daily and got sick anyway.  I didn't bring this on myself; it's not a "lifestyle disease".

Wednesday, April 17, 2013

But, what can I eat?

You'll find that everyone you meet has an idea of how you can cure yourself with diet alone. 
I had one nurse tell me to go entirely vegan, only fresh organic produce ... having completely missed that I had told her I went to farmers market the week before and came home so exhausted that the fresh organic produce rotted in the front hallway before I felt well enough to carry it to the kitchen and put it in the fridge.  Given the choice between exhaustion and rotted produce or having Safeway deliver canned food that will keep in the front hallway until I feel up to putting it away, guess which I choose?
Another person wants me to go on a high-protein Atkins diet.  I love a good steak as well as the next person, but, like many people with CFS, my cholesterol is already on the high side.  It's probably not a good idea to get rid of the healthier things I eat to fill myself up to live on nothing but steak.
Someone else thinks my real problem is celiac disease and can be cured by avoiding wheat/gluten ... and refuses to listen to me that I eat very little bread to begin with because I don't like it.  My carb of choice is potatoes.
One of Dr. Oz's guests yesterday scolded an audience member to "get rid of the cookies entirely, they're going to kill you."
I decided 25 years ago that if I feel like eating cookies for dinner, I'm going to eat cookies.  I have quite enough pain in my life without the pain of deprivation.  I'm going to die anyway, so why deny myself a little pleasure now and then?
Here's some good advice about food and CFS from one of the British Myalgic Encephalomyelitis groups:

Monday, April 15, 2013

Did Sacramento City Councilwoman fire employee for getting sick?

Unfortunately, it's all too common.  They count on you being too sick to search for a lawyer.

Dr. Montagnier (who won Nobel for HIV) is working on ME now

LemonFoundation informs us:
Dr. Luc Montagnier (who won the 2008 Nobel for his HIV discovery) is working on ME now.

Facilitated by the UN, I met with Luc and his Parisian colleagues (twice now) to provide blood samples.

This is an interview with Luc from "House of Numbers(HON)" (4 minutes):

90-minute HON documenary is: