Friday, April 12, 2013

Fibromyalgia Breakthrough: Treat The Causes, Not Just The Symptoms

All Fall Down for M.E. -- a UK lie-in

"All Fall Down for M.E." .. an awareness event at 2.30 for 3.00 in Westminster on M.E Awareness Day Sunday May 12th.
 
.. the organisers (who are parents/carers I believe) hope to get this televised for as much coverage as possible. They state that they're not affiliated with any particular charity, although they particularly support those which promote and fund biomedical research.
http://www.me-alivingdeath.org.uk/meawarenessevent.html
 

There are some useful quotes and links on this page:
http://www.me-alivingdeath.org.uk/mapdetails.html
 

Thursday, April 11, 2013

Don't believe your doctors

 
DHEA Levels & Fibromyalgia

BIG Announcement!

You are invited to my Treating and Beating Fibromyalgia Webinar!


April 28, 2013

2pm-3:30pm CST


The webinar is free but you need to register, supply your email, to reserve your spot and to receive the handouts that go with this presentation.

Due to a high response, I have opened the webinar up from 150 to 250 people!

Find out how to feel good again. I'll be sharing my protocols that I've used for the last 18 years to help thousands of fibro patients feel good again.


For more information and to register today visit: www.endfibronow.com

Don't Believe Them When They Say ...
"All your labs are normal"

If you are like the majority of my patients, your doctor periodically runs blood work and then reports all your results are normal. Accepting this report from your doctor can be disastrous. Why you ask? Doctors will often shrug off slightly positive blood work-if normal calcium is 10.4 and yours is 10.5, they'll often tell you your labs are normal. This is especially true for some lab values that have large high and low parameters- normal for DHEA is 35ng/dl-450ng/dl. That is a big window.

Well guess what, research and clinical experience clearly show that women do best at 300-350ng/dl, and men do best at 350-450ng/dl. If your DHEA is a paltry 45 they'll tell you it is fine don't worry.

Meanwhile because it is low normal you'll most likely suffer with reduce stress coping abilities, low sex drive, anxiety, lowered mental clarity, depression, poor immune function, and poor sleep among other symptoms. DHEA is your master stress coping hormone.

Fibro Stress

An elevated calcium level, something I routinely see ignored, can be a sign of hyperparathyroidism - main cause is a benign tumor in one of the parathyroid lobes. Increased calcium causes increased risk of heart attack and stroke as excess calcium deposits clog up arteries. Kidney failure is another potential danger of elevated calcium levels due to hyperparathyroidism.

Poor sleep, achy muscles, high blood pressure, and fatigue are just a few symptoms associated with hyperparathyroidism.

Anytime blood calcium is elevated or even high normal, above 10.0 in adults, a parathyroid tumor should be suspected and further blood work should be ordered. This is just "good doctoring" doing the needed detective work, following up, ordering tests, looking for and exploring any clues.


Working with lazy doctors or doctors who follow the herd mentality can be dangerous, at the least, frustrating and unproductive.

If you're tired of dealing with doctors who don't understand fibromyalgia or doctors who can't help you, one drug after the other, why not try something new. I've helped thousands feel good again are you next?


New patient phone or in clinic fibro consults are $79.


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Listen to some of my patient testimonials here

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For more information and to register for my April 28th Fibromyalgia Webinar visit: http://EndFibroNow.com

What your doctor won't tell you:

They won't tell you about potentially dangerous drugs, adrenal fatigue, elevated calcium levels and what this may mean, low ferritin levels and what it means, thyroid antibodies, DHEA, and more, more much.

You can listen yourself, free of charge by visiting:

http://DrRodgerMurphree.com/fibro-conference-recordings

5th Edition Coming Soon!
Dr. Rodger Murphree, 2700 Rogers Drive, Suite 100, Homewood, AL 35209, USA



Mycotoxins and CFS

NOTE: Correlation and causation are not the same thing, but it has been
hypothesized that many different pathogens can trigger a disease or
diseases with core symptoms in common. Pathogens may also exacerbate
existing disease or work together.


Toxins 2013, 5, 605-617; doi:10.3390/toxins5040605
toxins ISSN 2072-6651
www.mdpi.com/journal/toxins


Detection of Mycotoxins in Patients with Chronic Fatigue Syndrome

Joseph H. Brewer, Jack D. Thrasher , David C. Straus , Roberta A. Madison 4
and Dennis Hooper

Abstract: Over the past 20 years, exposure to mycotoxin producing mold has
been
recognized as a significant health risk. Scientific literature has
demonstrated mycotoxins as
possible causes of human disease in water-damaged buildings (WDB).

This study was conducted to determine if selected mycotoxins could be
identified in human urine from patients suffering from chronic fatigue
syndrome (CFS). Patients (n = 112) with a prior
diagnosis of CFS were evaluated for mold exposure and the presence of
mycotoxins in
their urine.

Urine was tested for aflatoxins (AT), ochratoxin A (OTA) and macrocyclic
trichothecenes (MT) using Enzyme Linked Immunosorbent Assays (ELISA). Urine
specimens from 104 of 112 patients (93%) were positive for at least one
mycotoxin (one in
the equivocal range).

Almost 30% of the cases had more than one mycotoxin present. OTA
was the most prevalent mycotoxin detected (83%) with MT as the next most
common
(44%). Exposure histories indicated current and/or past exposure to WDB in
over 90% of
cases.

Environmental testing was performed in the WDB from a subset of these
patients.
This testing revealed the presence of potentially mycotoxin producing mold
species and
mycotoxins in the environment of the WDB. Prior testing in a healthy
control population A hypothesis of possible mitochondrial damage in CFS
is presented following review of the literature. The mitochondrial
dysfunction may be triggered and accentuated by exposure
to mycotoxins.

OPEN ACCESS The full study can be read here:
http://globalindoorhealthnetwork.com/files/Detection_of_Mycotoxins_in_Patients_with_Chronic_Fatigue_Syndrome_2013.pdf

Received: 18 March 2013; in revised form: 1 April 2013 / Accepted: 3 April
2013 /
Published: 11 April 2013

USA TODAY on "Kingdom of the Sick"

 

"There are still all of these stereotypes of people who are sick," says Edwards, who also has celiac disease, an immune disorder. "The biggest is that it is somehow our fault."

Blame and stigma trail people with conditions from AIDS to obesity, she says.

Those attitudes are rooted in history and human nature but come with a twist today: Many people may believe that medical science has advanced to such a degree that there is literally no excuse for an incurable illness. Those who suffer from poorly defined conditions such as chronic fatigue syndrome and fibromyalgia bear an extra burden, she says: Even some doctors doubt they are as sick as they say they are.

Women, in particular, she says, still risk being labeled "hysterical females" if they come to doctors with symptoms that can't be easily diagnosed or that don't respond to treatment.

Wednesday, April 10, 2013

'How to Be a Friend to a Friend Who's Sick': Real talk from one who suffered

 
 Rather than bewail my daily incarceration in the waiting room, I could write a book on the subject of friendship and illness that would answer all those questions.

Tuesday, April 9, 2013

In the Kingdom of the Sick | Laurie Edwards

 
New book released today!
 
Thirty years ago, Susan Sontag wrote, "Everyone who is born holds dual citizenship in the kingdom of the well and the kingdom of the sick … Sooner or later each of us is obliged, at least for a spell, to identify ourselves as citizens of that other place."
 
 

Sunday, April 7, 2013

The tooth, the whole tooth, and nothing but the tooth

One of the interesting side effects of CFS is dry mouth.  Dry mouth leads to tooth decay.  Unfortunately, by the time someone told me that there's a mouthwash/mouth spray specifically for dry mouth, my teeth were too far gone.  (But I'm telling you, so you can do something before it's too late.  RiteAid's house brand is called "oral care dry mouth spray", and there are name brand ones as well.)
 
To further complicate matters, for a couple years the first thing I did every morning was throw up, often before I even got out of bed.  The quacks tried to tell me I was binging/purging, or so stupid that I eat things I'm allergic to, so that they didn't need to spend the time looking for the real cause.  I finally talked to a doctor who asked questions instead of leaping to conclusions, who fixed the problem.  But there again, too late -- like any teenage bulimic, that daily bath in stomach acid took its toll on my teeth.
 
Last month, I had the remaining teeth on top extracted (we'll do the bottom teeth later; most of those can probably be saved for a few more years).  One spot still hurt even at the second post-op appointment, so the dentist guessed (apparently correctly) that there was an infection she couldn't see and gave me antibiotics.  Even if she guessed wrong, ABX tend to help some of my other symptoms, so I'm happy to take them.
 
Within 24 hours, I had Herxheimer symptoms.  Wasn't sure if it was the mouth or the CFS, but Herx-ing is a good sign either way.  At this point, the mouth is almost pain-free, so apparently the dentist guessed correctly.
 
It hurts too much to have the denture in, so although I do have the pretty new teeth, they've been sitting in their container, and I've been eating things that don't require chewing: soup (obviously), pudding, yogurt (which isn't allowed with antibiotics), Jell-O...  Ensure/SlimFast are problematic for me because they contain soy protein and more than 1 bottle a day is enough soy to activate my allergy.  With a little creativity, I realized that if I start with flaked tuna, I don't need to chew tuna salad; same thing if you make your egg salad in the blender so there are no chunks.  Melt lots of cheese into mashed potatoes.  Yesterday I had refried beans with lots of cheese. 
 
Since I haven't been anywhere close to the RDA of fruits and vegetables the past 2 weeks (I tried a can of vegetable soup, but the pieces of veggies were too large to swallow without chewing), I tried some raisins in my Cream of Wheat this morning -- and discovered that there's no flavor on the outside of raisins; if you can't bite into them they're tasteless.  Fortunately, there was plenty of flavor in the cinnamon in the Cream of Wheat.
 
Today I'm going to make lentil stew.  I'll have to run the carrots through the blender first.  I flavor my lentils German-style, with vinegar.  So that's a different flavor to keep the food choices as interesting as possible.  For lunch I'm thinking of licking Nutella and peanut butter off a spoon.  Again, just to mix up the flavors, because I'm getting really tired of soup and pudding.
 
A friend who was on the "mush diet" last year commented that she cooked normal food for the family and just ran her portion through the blender -- it "looked awful but it tasted good".
 
Of course, you could always eat baby food.....