Friday, February 15, 2013

The Chosen People

A fellow patient commented "We are the chosen for this job." Like Tevye, I ask "couldn't you have chosen someone else?" My life had quite enough complications even before having this disease dumped on me, pushing me into the role of ambassador, educator, activist, tilter at windmills, and beater of head against brick walls.

Thursday, February 14, 2013

CFS and Polio Vaccine

SV40 has nothing to do with CFS. Oral polio vaccination likely did, clearing the way for non-polio enteroviruses to enter the gut and the brain. That's what's happening in India right now. I read most disturbing article published in the Indian Journal Of Medical Ethics Oct-Dec 2012: Polio Programme: Let Us Declare Victory And Move On by Neetu Vashisht and Jacob Puliyel. ( )
The authors present data from the Indian National Polio Surveillance Program (which is collected for the sole purpose of ruling out polioviruses as the cause of paralysis) showing correlations -- over time from 1999 to 2010 and across states in a given year -- between the number of OPV doses administered and an increase in non-polio enterovirus-caused acute flaccid paralysis (AFP). ( )

• In 2011, in children 15 years-old or less, there were 47,500 cases of AFP occurring primarily in the "over-vaccinated" states of Bihar and Uttar Pradesh, where children have been administered a increasing number of OPV doses, from "approximately" 4 per year in 1999 to as many as 10 doses per year in 2010.

• In 2012, there were 61,000 AFP cases, with 59% of cases occurring in Bihar and Uttar Pradesh. ( ) Tested stool samples found OPV poliovirus in 2,635 cases(4%) and non-polio enteroviruses (Coxsackie, echoviruses) in 12,152 (20%). The remaining 44,547 (75%) were listed as "non-typed."

However, a more technically sophisticated study of 47,000 North India AFP cases from 2004-2007 found that of "non-typed" viruses in AFP cases, 67% were non-polio enteroviruses. The remaining 33% remained non-typed, but EV-86 and HEV-97 were identified. ( )

The data suggests two significant problems with the polio "eradication" program in India:

1) OPV-induced antibodies in the gut are making room for the growth of non-polio enteroviruses that not only are know to cause paralysis but also can cause four times the number of deaths as do the wild polioviruses;

2) OPV is mutating and causing 2,300 cases of polio per year. How can India be proclaimed "polio-free" when the vaccine itself is causing polio?

Bill Gates and the WHO are eliminating wild poliovirus infections overseas, which is exactly the CDC's plan to protect the US ("Fight polio there so we don't have to fight it here"). But, in doing so, they are condemning India and subtropical countries with poor sanitation to epidemics of AFP caused 1) by mutated oral polio vaccine strains and 2) by dozens of enteroviruses (for which there are no vaccines) that cause the same brain and spinal cord damage as the polioviruses but are more deadly. India's polio cases are being replaced by increasing numbers of cases of AFP and vaccine-induced polio.


for the relationship between non-polio enteroviruses and CFS.

Hope you're well!

Dick Bruno

Wednesday, February 13, 2013

The Unchosen Path: Reflections from the Inner Journey of Illness by Laurie Hope.

The Unchosen Path: Reflections from the Inner Journey of Illness by Laurie Hope.

"Everyone seeks to be happy. But when we physically feel lousy, our external sources for happiness are not so easily accessible. Sometimes the suffering of illness lies not so much in its accompanying physical sensations, but in the personal sense of diminishment and the social isolation and separation it brings."
* * *
If I had a dollar for every time someone who doesn't deal with chronic illness told me "just be happy", or the even more ridiculous, telling someone who's effectively bedridden to "just go out to a movie or something".....
It's hard to be happy when you're in constant pain so severe you can't sleep.  When your body is shutting down from years without sleep.  When you know you're dying and all your friends insist "no, you're not!" instead of listening carefully to what you're saying that backs up the statement.
When your chronically ill friend says they're lonely, engage your brain before you open your mouth.  Ask if you can come over for a visit before you say something stupid like "why don't you join a club to meet people" or "take a cruise!" (ummmm, do you really think that Disability pays that much?)