Wednesday, June 12, 2013
Life Disrupted: Getting Real About Chronic Illness in Your Twenties and Thirties
Amazon.com: Life Disrupted: Getting Real About Chronic Illness in Your Twenties and Thirties (9780802716491): Laurie Edwards:
I got sick at 28, got diagnosed at 29, lived with limitations throughout my 30s, and lost my career in my early 40s.
People don't think of young people as having chronic illness -- oh, that's only something that happens to old people -- and don't understand the adjustments we have to make in order to get by in life. I could pass for healthy at work, but when I got home, it was obvious that I was Not Well.
While other people were going out on weekends to hike and ski and kayak ... I was home trying to rest up enough to get through the next week of work. Most weekends I didn't have energy to socialize. Every expenditure of energy evenings and weekends had to be weighed against what it would cost me -- if I do this today, will I have to take Friday off work because I've "run out of gas"?