Contact: Bob Miller and Courtney Miller
DISABLED AMERICAN ON DAY 10 OF HUNGER STRIKE
Asks U.S. Government Health Agencies to Hold Meeting on ME/CFS
February 7, 2013 -- Calling attention to the plight of one million disabled Americans suffering with ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome) and their lack of access to treatments and medications, patient Robert Miller continues his hunger strike, now on day 10.
As background, the Food and Drug Administration decided on Monday, Feb 4, 2013, that it will not approve Ampligen, the first medication ever considered by the FDA for ME/CFS. This illness disables one million Americans, leaving many bedridden, homebound and suffering for decades on end with little hope for recovery and little help from the U.S. government, which dedicates a mere $6 million dollars each year to ME/CFS research. There are no FDA approved medications for this illness.
Long-time ME/CFS sufferer Robert Miller says he will stop his hunger strike if the FDA agrees to hold a meeting with other key U.S. government health agencies, including the CDC, NIH, and HHS, along with well-known experts in the field of ME/CFS research, and along with the patient community, all with the goal of gathering the best thinking for how to continue, or initiate, studies on Ampligen and other drugs to treat ME/CFS.
Sample of news coverage on Miller's hunger strike:
PBS television program, "White House Chronicle." Feb. 3, 2013.
NBC's Reno, Nevada affiliate: http://www.mynews4.com/news/
Another ME/CFS patient, Rivka Solomon, a Boston-area playwright who has spent much of the past 23 years homebound and bedridden, states, "Robert Miller is conducting this hunger strike for the million disabled Americans with ME/CFS who feel abandoned by their government for over two decades. Ignoring this very sick population can not continue. We have no choice but to take extraordinary measures, such as a hunger strike, to get the help we need from the U.S. government. We hope HHS Secretary Sebelius cares enough about disabled Americans to agree to Mr. Miller's very reasonable hunger strike demands."
Resource list: Experts in ME/CFS
Dr. Daniel Peterson, Sierra Internal Medicine, Reno NV 775-832-0989
Dr. Nancy Klimas, Nova Southeastern University, Ft. Lauderdale, FL 305-275-5461
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