Friday, November 2, 2012

Painkillers not as addictive as feared, study finds - Vitals

"If you're a person that doesn't have a history of addiction and doesn't have any major psychiatric problems, narcotics are relatively safe"
* * *
Those few people who are likely to become addicted can generally be weeded out in advance.  There is NO REASON for doctors to refuse adequate prescription pain medication to those who do not have addictive personalities.

Another Blow to Chronic Fatigue Syndrome Sufferers

Another good article from my friend Toni Bernhard

Robbery Without a Gun

Free eBook about Disability insurance

Wednesday, October 31, 2012

Help fund research at no cost to you

How can someone help fund research without any cost to them? By doing
their online shopping at and shop at any of their over 1,000 stores!
There's no cost, no obligation and no hidden fees and a percentage every
purchase will automatically go, 100%, toward funding CFIDS/ME research.

Shopping is automatic. When you go to any store at the mall,
the store automatically sends information to and, when you've
designated the National CFIDS Foundation, you've helped to fund research without
one penny taken out for anything else!

The mall at gives you the percentage a store is offering along
with special coupons and special sales while each purchase will benefit
research for CFIDS/ME.

The National CFIDS Foundation's only goal is to fund research that will
prove that the cause we recently announced will have a treatment found. We
joined in 1997 and it has, thus far, they have sent us thousands
that we have used to further research.

A huge thank you to every patient who has helped us by shopping via and thank you to all who will join them to help us continue to fund
research for a viable treatment.

For better health,

Gail Kansky
President, National CFIDS Foundation
103 Aletha Rd.
Needham, MA 02492-3931
_http://www.NCF-NET.org_ (
* * *
Some of the stores give a larger percentage of your purchase than others, so look at the list before you decide where to shop.

Tuesday, October 30, 2012

An essay on moderation

Do you think that progress will be made at the current rate?
I do not.

Is moderation (as in moderateness) morally justifiable?


Here are three quotes from distinguished citizens of the
country that performs the most research on diseases. The
topic is moderation.

The first is famous:

I have almost reached the regrettable conclusion that the
Negro's great stumbling block in his stride towards
freedom is not the White Citizen's Councilor or the Ku
Klux Klanner, but the white moderate who is more devoted
to "order" than to justice, who prefers a negative peace
which is the absence of tension to a positive peace which
is the presence of justice, who constantly says, "I agree
with you in the goal you seek but I cannot agree with your
methods of direct action"; who paternalistically believes
he can set the timetable for another man's freedom; who
lives by a mythical concept of time and who constantly
advises the Negro to wait for a more "convenient season".

Shallow understanding from people of good will is more
frustrating than absolute misunderstanding from people of
ill will. Lukewarm acceptance is more bewildering than
outright rejection."

-- Martin Luther King (attributed to "Why We can't Wait,"
Letter from a Birmingham Jail, Harper & Row 1963)

The next is less famous:

"I am aware that many object to the severity of my
language; but is there not cause for severity? I will be
as harsh as truth, and as uncompromising as justice. On
this subject, I do not wish to think, or to speak, or
write, with moderation. No! no! Tell a man whose house is
on fire to give a moderate alarm; tell him to moderately
rescue his wife from the hands of the ravisher; tell the
mother to gradually extricate her babe from the fire into
which it has fallen;-but urge me not to use moderation in
a cause like the present. I am in earnest--I will not
equivocate--I will not excuse--I will not retreat a single
inch--AND I WILL BE HEARD. The apathy of the people is
enough to make every statue leap from its pedestal, and to
hasten the resurrection of the dead."

-- William Lloyd Garrison, inaugural editorial in the
anti-slavery journal The Liberator, 1 January 1831

Finally a sentence with insight:

"Perhaps the sentiments contained in the following pages,
are not YET sufficiently fashionable to procure them
general favour; a long habit of not thinking a thing
WRONG, gives it a superficial appearance of being RIGHT,
and raises at first a formidable outcry in defense of

-- Thomas Paine, Common Sense, 1776

Their respective movements succeeded.


Did ACT-UP increase or decrease meaningful HIV / AIDS

Would more or fewer people be alive if ACT-UP had used their
"inside voices"? Did they "drive the good researchers
away"? Did they "hurt their own cause"? Should ACT-UP have
endorsed an association's "blotchy skin primer" that
promotes exercise and claims that opportunistic infections
play no role?

Does throwing meat to a lion make it go away? Does placing
a late-stage sufferer in front of its jaws save an
early-stage one from becoming late-stage?


Every day, each of us needs to ask, "What can I do for
advocacy today?"

What is the magic spell that makes informed political action
everybody's highest priority? What resources are needed to
make that happen for millions of people?

I believe that most of us (INCLUDING MILLIONS OF EARLY-STAGE
SUFFERERS) will die early from the disease before any
meaningful treatment ever becomes meaningfully available, unless
we step up action by orders of magnitude. ACT-UP had
serious manpower and we might need more than they had. So
please speak up. Please say something. Please get
strategically loud. One person can make the difference.


P.S. More on manpower (I posted this before):

Permission to copy this document verbatim in any medium is
GRANTED. Please do.

Sunday, October 28, 2012

MARYLAND - fibro study recruiting participants

Note: Neurotropin® (NTP) is a nonprotein extract from inflamed skin of
rabbits inoculated with vaccinia virus and is widely used in Japan to
treat neuropathic pain such as post-herpetic neuralgia (PHN) and other
painful conditions. The principal investigator hypothesizes that
fibromyalgia is a neuropathological pain condition.

Neurotropin to Treat Fibromyalgia

Please refer to this study by its identifier: NCT00366535

This study will examine the safety and effectiveness of the
experimental drug, neurotropin, for preventing or easing pain
associated with fibromyalgia. A disorder that primarily affects women,
fibromyalgia causes widespread aching and stiffness in muscles.
Neurotropin has been used in Japan for many years to treat various
chronic painful conditions, including fibromyalgia.

Women with fibromyalgia who have been treated unsuccessfully with
standard therapy may be eligible for this study. Patients must have a
history of widespread pain for more than half of the days in each of
the three months before they enter the study. Candidates are screened
with a medical history, physical examination, blood and urine tests,
questionnaires and an electrocardiogram (EKG).

Participants take their usual medications for fibromyalgia in addition
to either neurotropin or a placebo (look-alike medicine with no active
ingredient). At 6 weeks and 12 weeks into the study, they return to
the NIH Clinical Center for evaluation of their sensitivity to pain
and level of physical capability. After 12 weeks, study subjects
"cross-over" their medication; that is, patients who took neurotropin
for the first 12 weeks of the study take placebo for the next 12
weeks, and vice-versa. Again, after 6 and 12 weeks, patients return
for evaluation.

Participants have blood and urine tests six times during the study and
complete questionnaires each week about their pain, symptoms, and

Contact: Leorey N Saligan, C.R.N.P. (301) 451-1685
Contact: Raymond A Dionne, D.D.S. (301) 496-0294

United States, Maryland
National Institutes of Health Clinical Center, 9000 Rockville Pike Recruiting
Bethesda, Maryland, United States, 20892

Contact: For more information at the NIH Clinical Center contact
Patient Recruitment and Public Liaison Office (PRPL) 800-411-1222
ext TTY8664111010

Sponsors and Collaborators
National Institute of Nursing Research (NINR)

Principal Investigator: Raymond A Dionne, D.D.S. National Institute of
Nursing Research (NINR)

For more information: