Friday, July 13, 2012

"This is the beginning of the end of the AIDS epidemic"


"This is the beginning of the end of the AIDS epidemic," said Havlir.

While she warned that much work still must be done, the epidemic has crested. Havlir has been an HIV researcher and clinician in San Francisco since 1985, just as the epidemic began its tragic march. "In the '80s, we had no real treatment. A diagnosis was a death sentence," Havlir said. "It was a disease that seemed to be affecting a very young and stigmatized population. It robbed many people of dignity."

But after a decade of research, hope for a cure finally surfaced. "The moment we realized that something was working was astonishing," remembered Havlir.

Now Havlir is beginning to see the epidemic come full circle. Treatment has made it possible for those infected to live long and happy lives. Recent drug breakthroughs have revealed routes to prevention. And in 2010, a man was successfully cured of HIV for the first time through a stem cell transplant.

Moving On… | X Rx Blog

Dr. Jamie asks:
Chicken or egg. Do more crazy people get the disease or does the disease make people crazy or is it the way patients are treated that creates such anger and isolation as to drive them crazy?

Tuesday, July 10, 2012

Monday, July 9, 2012

The Kafka Pandemic: LeRoy and the next age of mankind, part 2


"The victims deserved it", "they brought it on themselves", "it's tradition", "it wasn't that bad", "I'm only doing my job", "they are scientifically proven to be morally inferior", "everybody else was doing it", "we didn't know", "it's the system", "it is absolutely permitted by the rules", "they are not like we are, they aren't really human", "we were only joking" — those are not reasons; they are pretexts and rationalizations.

* * *

Playing "Blame the Victim" is NEVER acceptable!





Food stamp fraud

"the truth is the "errors" in administering SNAP payments are within the 1% range and they are not fraud, but mistakes within the program's administration; the only fraud is from vendors who double-bill and cheat the government with unsubstantiated receipts. The eligibility requirements to receive SNAP are so stringent that it is all but impossible for program participants to qualify much less cheat."
* * *
In other words, just like Medicare/Medicaid, the "fraud" is performed by the rich who are creating false invoices, not by the poor recipients, but it's the poor who get blamed.
There aren't enough jobs out there for the able-bodied at the moment, which means it's even harder for the disabled to get hired.  My own experience with the Disability system is that the people who run it don't consider whether anyone would be willing to hire you; I was told more than once that "with your qualifications any firm should be very happy to hire you", and it's true that I was invited to interview for nearly every job I applied for.  What the judge was unwilling to take into account was my inability to do the job.  If you can't sit upright more than 5 minutes without feeling dizzy and needing to lie down, you can't work.  And every time I brought up working at home, the interview was instantly ended.  Nonetheless, the judge wanted to believe that I wasn't working because I wasn't trying hard enough to get hired, not because no one wanted to hire someone with my limitations.
The law says you can ask for a 5 minute rest period every hour.  It doesn't say you can work for 5 minutes and rest the remainder of the hour.  That's what I needed, and that's what was preventing me from getting hired.  When even the agency that helps the disabled get jobs refused to hire me, it became obvious that I was wasting time, money and energy on a job hunt.  That energy was better used looking for a doctor who'd take me seriously.

Sunday, July 8, 2012

Understanding Long-Term Outcomes of Chronic Fatigue Syndrome

Understanding Long-Term Outcomes of Chronic Fatigue Syndrome
Molly M. Brown1, David S. Bell, Leonard A. Jason, Constance Christos,
David E. Bell
Journal of Clinical Psychology
Article first published online: 29 JUN 2012
DOI: 10.1002/jclp.21880
Back in 2010, Dr. David S. Bell described a non-recovered "recovered"
ME/CFS case (from the 25-year follow-up study):
(go down to: "ME/CFS Essay: Fatigue with and without Orthostatic Intolerance")

(Twitter: @TomKindlon)

Take this survey: MCS/CFS/diabetes

Permission to forward.

Researcher Dr. Harold Zeliger is conducting a study on the relationship between MCS, CFS, and diabetes.  He is a chemical toxicologist who has been studying the consequences of chemical combinations on human health.  Dr. Zeliger wrote the book "Human Toxicology of Chemical Mixtures".  A write-up appeared in the MCS America News in October of 2008 and may be found at

Please take a moment to answer this brief 5 question survey, which can be accessed here:  Thank you very much for taking the time to complete this survey. The results will help physicians and scientists better understand the nature of these conditions and hopefully lead to their prevention and treatment. 

The Best Drug for ME/CFS? The Other Side of Klonopin: A Patient’s Story


"Klonopin is an anti-seizure medication that is in the Benzodiazepine family of drugs. In addition, its uses include a mood stabilizer, a tranquilizer and a sleep medication.

Patients who suffer from ME/CFS are often prescribed Klonopin to help with their insomnia and with their "neurological wired symptoms".