Saturday, May 12, 2012

Medical forum making fun of ME/CFS patients

Medical forum making fun of ME/CFS patients

This below link appears to be a forum of nurses and medical people who are focusing on making fun of ME/CFS in the most cruel way, including laughing at the most ill in our community. I suggest folks from our community reply, but do so with information instead of with anger and simply attacking back, otherwise we risk confirming their misguided beliefs about us. Also, at least one of them has infiltrated the ME/CFS forum Phoenix Rising and is posting there. Start reading their forum here, and prepare to be horrified:  

Make Up Your Minds!!!!!!!!

Note: Because some people refer to chronic fatigue syndrome as chronic
fatigue, whereas others use the term chronic fatigue merely to denote
longstanding tiredness it becomes very difficult to figure out who is
talking about what. It should be noted that stress may indirectly
predispose any person to any disease by impacting the immune system.
However, stress, like fatigue means different things to different
people. One person's stress may not affect someone else. And as always
the key is the definition. How one defines being a workaholic will
impact what is found or studied.

The Workaholics
The respectable addicts
by Barbara Killinger, Ph.D.

The Workaholic Breakdown Syndrome: Chronic Fatigue
The role of chronic fatigue.

Published on May 11, 2012 by Barbara Killinger, Ph.D. in The Workaholics

Dependent on others to affirm their self worth, workaholics suffer a
crisis of confidence as the six escalating fears discussed in the
previous blog, especially the fear of failure and increasing paranoia,
cause anxiety levels to climb and eventually destabilize functioning.

Chronic fatigue occurs when both the mind and the body are drained of
all energy by constant rushing and over-scheduling. The long excessive
hours of work heighten stress levels, compounded by increasing
emotional turmoil, self-doubt, and growing relationship problems. More
frequent and crashing bouts of fatigue serve as a circuit breaker to
immobilize the frenetic workaholic. Adrenalin, after all, was intended
for emergency situations, for fight or flight.

As stress begins to take its toll, workaholics must rely on an
adrenalin "fix" just to keep going. For awhile, caffeine stimulants do
help them stay alert. Like alcoholics, however, a greater intake is
necessary as periodic bouts of fatigue become more frequent and
severe. Like a worn-out elastic that has lost its spring, the
adrenalin system eventually crashes, and workaholics slip into a
serious state of chronic fatigue.

Their health eventually does break down.

The full blog post can be found here:
* * *
If I have CFS because I'm a broken-down workaholic, then why is the recommended treatment for me to go back to work as quickly as possible?  Is that not like telling an alcoholic that the cure is to sit in a bar 40 hours a week?!
Seriously, the medical community can't seem to make up their minds: do we have CFS because we're too lazy to work, or because we're so driven that we worked ourselves into collapse?  Even with CFS brain, I can figure out that's self-contradictory.

7 places where you can get a free online education

"There has never been a better time to flex your brain with free online courses, so we scoured the Web high and low and found some of the best options for increasing your brainpower from the comfort of your computer without paying a dime in tuition. Here are some of the best options to be found. Enjoy!"
Since you're not paying tuition, what difference does it make if you're too brain fogged to pass the final?  The point is to learn a little something and fill a few hours of your day while you're stuck at home too sick to go out.

Wednesday, May 9, 2012

Recording of today's webinar

The recording of today's webinar, "A Conversation with Roger King & Wilhelmina Jenkins," has been posted at The feedback has been overwhelmingly positive and we hope you'll listen in to the recorded conversation.

REMINDER - Today's webinar

Today at 2 PM (Eastern time) we'll talk with Roger King and Wilhelmina Jenkins about their lives, how CFS changed them and other themes of Roger's latest novel, "Love and Fatigue in America." Please join us and the 228 people who have registered so far!

Tuesday, May 8, 2012

Domino's Launches Gluten-Free Pizza Crust, With A Catch


All in the mind? Why critics are wrong to deny the existence of CFS

"This week is Myalgic Encephalomyelitis Awareness Week or, as it's more accessibly referred to these days: M.E. That may not mean a great deal to you. Certainly, it didn't to me.  Oh wait, yes it did.  Based on no personal knowledge whatsoever - fortunately neither I or my loved ones have M.E. - my judgement was gleaned from how the world has portrayed the illness."
"Through 'Voices...' - and the subsequent research I have conducted - I have come to realise that what I thought I knew about the illness was a fallacy but, more importantly than that, was actually detrimental to those affected.  So, as a naturally curious individual (I'm not a journalist by mistake) I began to question why I had been furnished with one version of events - and inaccurate ones at that.  The more I began to delve into the subject the more curious it all became."
Myth No. 1: ME is a mental illness
Myth 2: ME is just extreme tiredness, right?
Myth No. 3: M.E. is just like a bad flu
Myth No. 4: M.E. sufferers should just 'pull themselves together'
Myth No. 5: Only adults have M.E.
Myth No. 6 - You can 'catch' M.E.
Myth No. 7: Real M.E. sufferers are few and far between
Myth No. 8: Only severe cases of M.E. are worth acknowledging
Myth No. 9: Children with M.E. have neglectful parents Myth No. 10: Physical exercise will benefit M.E. sufferers
Myth No. 11 - M.E. is not life-threatening
Myth No. 12: M.E. is an excuse not to work
"So, for M.E. Awareness Week, let us be clear. M.E. is comparable to AIDS and cancer and all the other vicious and uncompromising diseases that savage the body and, in some extreme cases, kill it completely."

Read more: