Wednesday, April 11, 2012

What to Do when Doctors Make You Feel Like a Hot Potato

Lisa Copen is founder and director of, a nonprofit dedicated to practical and spiritual encouragement of persons around the globe who are coping with chronic illness or pain. Lisa, who lives with rheumatoid arthritis and fibromyalgia, pursues this mission with the help of many dedicated volunteers.
Q: Have you had the experience of one doctor passing you off to another, and that one to another, and no one really wanting to 'own' you as a patient?

For a while I have felt I was the ball in a game of ping pong between my general practitioner and a specialist, each telling me to see the other. Currently, as new issues develop, I have become a "hot potato."

My question is, what do you do to get doctors to listen and stop passing the buck?

Tuesday, April 10, 2012

CFS: One Disease and Its Costs » White House Chronicle

a new one from our good friend Llewellyn King

What would happen to health care if a million new patients with just one of many now incurable and largely untreated diseases flooded the system, relying on medicine that could cost $70,000?

It might happen. Actually, it's more than desirable that it should happen.
The horror of this affliction is almost indescribable. I've been writing and broadcasting about these patients for several years and never have I seen such extended suffering, lives hollowed out, every tomorrow to be feared, the slightest departure from strict routines of inactivity to be met with punishing suffering.