Saturday, January 28, 2012

Tinkerbell and Hummingbird Blog

*Please repost*

I'm so excited, the 'Tinkerbell and Hummingbird M.E. Blog' is now live!

This blog is the brainchild of severe M.E. patient Alison Bell (from the
UK), and she kindly invited me along for the ride. The blog aims to talk
about all sorts of issues surrounding M.E. and how it affects our lives
and what living with M.E. is like - rather than just giving the medical
and political facts like HFME does. Alison has done a great job putting
the site up.

Alison and I really hope this new blog is somewhere MEites will enjoy
spending some time! The first 2 blog posts are up and slowly but surely
more will be added over the coming months.



Best wishes,

Jodi Bassett and Alison Bell

The Hummingbirds' Foundation for M.E.

Thursday, January 26, 2012

British Woman, Blinded, Paralyzed By Food Allergy

To anyone who thinks those of us with food allergies should just suck it up and eat what everyone else is eating, don't be so overdramatic -- here's why I INSIST on knowing what's in that casserole before I dig in!

How to Help Your Doctor Understand ME/CFS Disability


Wednesday, January 25, 2012

Get Well From ME » 7. What To Do When Your Friend Has An Invisible Illness

"People with ME are usually the most conscientious and highly motivated people I've ever met. We honestly, desperately want to do stuff. It's not like when your back is turned, we stop "pretending to be ill" and just get on with fun things and enjoy an easy life! No, it's the complete opposite. When you see us, we are mustering all our energy to be as normal and energetic and look as healthy as we possibly can – and as soon as you're gone, we collapse"

New Link to Dr. Jamie's Blog


Dr. Jamie has changed blog hosting for her blog, so click here to get to it.

Monday, January 23, 2012

The Kafka Pandemic: Three things people don't know

"If you cannot explain the facts of late-stage disease, then you cannot explain the disease.  If your explanation does not fit the facts, then it fails"
Good points!  One of my doctors, after I presented him all the symptoms that proved it wasn't depression, told me "nothing you said made sense".  Of course not.  He was trying to sledgehammer these symptoms into his desired diagnosis and the stuff I was telling him wouldn't fit.  In his arrogance, he couldn't possibly be wrong, therefore I had to be too stupid to know what my own symptoms were.