Saturday, December 22, 2012


When the first edition of Chronic Fatigue Syndrome: A Treatment Guide was completed we were asked what we would do with the manuscript if a cure was found before the publication date. "Burn it!" we said. We weren't being naive. The late nineties were a heady time for CFS advocacy and support groups.
Verrillo, Erica (2012-09-14). Chronic Fatigue Syndrome: A Treatment Guide, 2nd Edition (Kindle Locations 530-532). Erica Verrillo. Kindle Edition.
If you don't have a Kindle, you can get Amazon's free Kindle for PC app.
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Like Erica, I naively believed that a cure was just around the corner.  I was diagnosed by an Ivy League-trained virologist ... when someone like that says "I'm working on it", you believe in miracles.
25 years later, I am no longer naive and I no longer believe in miracles.  I now believe that the only way we're going to get a cure is patient power.  DIY.  OK, not so much "do" it yourself as Fund It Yourself.  There are some good research programs from people we trust -- Dr. Enlander at Mount Sinai in New York and Dr. Peterson at Simarron in Nevada -- where we can send our money with full faith that they're investigating ME/CFS and not some psychobabble.

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