Thursday, August 18, 2011
Wednesday, August 17, 2011
Letter to Prof Colin Blakemore: 'Disease of the brain, not the mind, has
no stigma' ( 'The Times', 2 August 2011)
by Susanna Agardy
Dear Prof Blakemore,
Re: 'Disease of the brain, not the mind, has no stigma' ( 'The Times', 2
In your article I note an unfortunate sidestepping of major issues in
'CFS' in which you include ME. From a discussion of 'CFS' you segue into
a discussion of mental illness. You seem to try to console 'CFS'
sufferers by saying that once neurology and psychiatry have been
reunited the stigma of their (mental?) illness will retreat. This
ignores the fact that ME is already considered a neurological illness
without being a psychiatric one, by the WHO.
As a sufferer, I would venture to claim that ME sufferers are not
affected by shame as you imply, but rather by feelings of neglect and
invalidation which their misdiagnoses and missed diagnoses inflict on them.
Patients with ME have been diagnosed with a psychiatric condition purely
on the basis that they have a physical condition – an intractable one
for which there is no simple test or explanation as yet. A group of
psychiatrists of whom Wessely is a leading member have invented a
diagnosis of somatisation or dysfunctional cognition for which there is
no evidence, and substituted it for the experience and symptoms of
patients, ignoring or reframing physical symptoms such as orthostatic
intolerance and post-exertional malaise. As a result, motives such as
malingering have been attributed to patients.
The psychiatrists then invented the CBT/GET treatment for this invented
diagnosis. Yet, CBT/GET is 'a purely pragmatic approach and without
theoretical foundation' as Prof Sharpe has cheerfully admitted. So, the
MRC has been supporting research on a treatment for which there is no
theoretical basis (with seriously adverse consequences already known to
patients and clinicians) for a condition of which the underlying
features were admittedly unknown to it and which has been reframed as a
psychological theoretical construct. All in the name of science and the
You seem to be saying that it was too hard for the MRC to get a handle
on this multi-faceted condition. So, the MRC settled on the assumption
that it is psychological even in the face of numerous findings of
physiological underpinnings by independent scientists many years ago. It
seems the MRC endorsed Wessely et al's prescription that 'No
investigations should be carried out to confirm the diagnosis.' In
addition, the Wessely school's claim that the more patients protest that
they have a physical condition the more they are thought to be
psychiatric purports to box in patients so that the psychiatrists can't
be proven wrong by scientific testing. This behaviour indicates an
active turning away from the physical aspects of 'CFS' by the MRC. No
wonder 'CFS' patients were protesting. We hope that the current
allocation of funds at least begins to repair the situation.
Patients do not generally attack researchers who approach their
condition with respect and a genuine open-mindedness to discovering the
source of their problems. The Wessely school has not shown this respect
nor any scientific open-mindedness. They insist on their psychosocial
model, ignoring the biomedical abnormalities in spite of the mounting
evidence for these. All the while they parade themselves as experts in
'CFS'. It is also widely ignored that Wessely has been insulting and
provoking ME patients for many years and sneering at their disappointments.
If one or more persons have unfortunately overreacted to his
provocation, is that an occasion to invite the media to ridicule and
denigrate an entire group of ill patients? Is this in accord with the
standards of behaviour in psychiatry? Wessely himself stigmatizes mental
illness in the course of his crusade against ME patients.
Wessely claims to have given up research on 'CFS' 10 years ago. How is
it then that we seen his name on at least two recent publications? (He
features as participanting author in the PACE study and the study of
XMRV and CFS with M McClure et al, both published in the past year.) His
recent publicity-seeking in relation to 'CFS' also does not indicate
retirement from the field.
Wessely has been widely quoted as saying that he now goes to Iraq and
Afghanistan to feel safer. This claim would appear to be grossly
disrespectful to the many thousands of civilians and soldiers who have
been killed and maimed there. I wonder if the maimed and the relatives
of the dead would agree with him? It would seem that Wessely is willing
to trivialize these large-scale, tragic conflicts to dramatise his own
sense of victimhood.
What benefit does Prof. Wessely hope to gain from lashing out at very
ill ME patients in this way?
I have just been talking on the phone with Krissy - Gurli's daughter and
very sadly I learned that Gurli passed away very peacefully at around 1pm
The card I sent on Saturday coincidentally arrived this morning local time
and Krissy took it to Gurli and she read all the messages sent from people
Krissy said that Gurli did squeeze her hand gently as an acknowledgement of
sorts so hopefully Gurli would have heard what we had all written before she
Just thought everyone here should know.
In time I am going to put all of Gurli's articles on their own page.
Krissy is going to write something for me to post on that page and there are
other things that will be added in time.
Anyone who reads this and wishes to write any words for her page I will also
post there in time.
I have no doubt that Gurli passed away from complications of severe ME and
quite possibly other things that were not diagnosed because as we all know;
the diagnosis of ME allows
doctors not to bother with tests and investigations that would obviously
cost money to carry out.
So sad......... another passionate voice silenced.
In the early 17th century Galileo carried out a piece of groundbreaking
scientific research which seemed to show that for years the authorities had
been talking gibberish.
The establishment tried to quickly replicalte Galileos results but despite
their very best efforts were mysteriously unable to do so.
How do you explain the discrepancy between our results and yours? they asked
"That's easy" replied Galileo "When I look through the telescope I always
try to ensure one eye remains open."
Take the opportunity to endorse or voice objections!
New blog post at CFSUntied
This note was created by Rosie Cox. it is about Ms. Gurl Bagnall, one of our staunchest advocated for M.E. patients over the past 25 years! Gurl has now been placed in Hospice! let's all pray for her.. xo TMH
Rosie Cox created a doc.
I think many of you will know the name Gurli Bagnall who has provided wonderful advocacy for people with ME from her outpost in New Zealand. Gurli is very very unwell at the moment, and is presently in a Hospice. Should you wish to send cards to her you can reach her at this address:
PO Box 717, Blenheim 7240, New Zealand
This is an example of her advocacy via thw written word:
Permission to Repost
HIDING YOUR HEAD IN THE SAND IS DANGEROUS TO YOUR HEALTH.
".the reduction of intelligence is an important factor in the curative
I say this without cynicism.
The fact is that some of the very best cures one gets
are in those individuals whom one reduces to amentia [simple mindedness]."
- Dr. Abraham Myerson
As human beings we have the tendency to hide our heads in the sand when
something unpleasant looms on the horizon. Nowhere is that more true than
in the medical field and for those who think it will never happen to them,
it is time to wake up and pay attention to what is happening to others
before it is too late.
There was a time when we rarely heard of adverse consequences to medical
treatments, but with the introduction of the internet, the reporting of
medical scandals has increased to the point of being a daily event.
The latest to come to light here in New Zealand, was the subject of this
week's TV documentary, "60 Minutes". It told the story of a 56 year old
farmer who had been diagnosed with swine flu. He was extremely ill and the
hospital informed the family that the life support that had kept him alive
for three weeks, was to be disconnected. There did not appear to have been
any discussion; it was simply a bald statement of intent.
To add to the family's woes, was the discovery that during the three weeks
on life support, the patient had developed leukaemia.
As a last effort to salvage the situation, the family asked that before
disconnecting life support, the doctors administer high doses of Vitamin C
intravenously but the request was rejected outright. When asked what harm it
would do since the doctors intended to remove life support anyway, they
reluctantly agreed to give it a try.
The lung xrays had been "misted" to the point where no details of their
structure could be seen. Two days after commencing the high doses of
Vitamin C, the lungs were clear. Not only that, but there was now no sign
of the leukaemia.
One would expect that members of the healing profession would be ecstatic
about the results and their international implications. Instead this body
of people whose business is health and fighting disease, gave every
indication of displeasure and that it would have suited them far better if
their patient had die.
The family kept a vigil and documented everything. To their dismay, they
found he was once more deteriorating and on investigation, were amazed and
angry to discover that when the dramatic improvement became apparent, the
doctors stopped the Vitamin C.
To cut a long story short, the family called in the legal heavy-weights and
the hospital felt it prudent to recommence Vitamin C and slowly the patient
started once again to recover - slowly, because the doctors were still
flexing their muscles and abusing their powers by refusing to reinstate the
initial high dosage.
Should there have been a criminal prosecution? If there had been no doctor
involvement, would the perpetrators face some sort of charge? Attempted
murder perhaps? There is a sinister aspect to cases like this which make
parents who withhold life-saving treatment from a child on religious
grounds a negligible offence by comparison.
Watch the documentary on the following URL and ask yourselves what the
medical agenda was. Certainly it had nothing to do with restoring and
preserving a healthy life. Could it be something to do with the death of
the patient being more convenient to the vaccine-pushing authorities than
publicity about the curative properties of Vitamin C?
The man who had been destined to die, was restored to his family and to
full health with all that goes with it.
Regrettably, where health is concerned all are open to dangers which can
mean anything from genuine, unintended and deeply regretted error, to murder
carried out with utmost cruelty for some self-serving purpose
Historically, sufferers of conditions such as Myalgic Encephalomyelitis (ME)
and Gulf War Illnesses (GWI), are amongst the victims who have with cold
deliberation, been subjected to medical abuse for many years.
Healthy people seem unable to envisage themselves in such a situation and
while they may be momentarily horrified when reading about it, they quickly
move on to the next item on their daily agenda.
When the axe falls unexpectedly and with agonising sharpness, the subject is
faced with medical hostility as the blame for their loss of health, earning
capacity, mobility and even life itself, is placed squarely on their own
In the ME community psychiatrist, Simon Wessely, is well known for his
activities in this regard; he and his colleagues are responsible for the
denial of appropriate care and financial support, and outright cruelty -
especially towards seriously ill children.
Since the mid 1900s, the situation has worsened and become more bizarre
with every passing year. The level of professional honour and ethics is
such that those who have suffered at the hands of medical ignorance and
abuse turn to their peers for support - peers whose only training is
personal experience in having survived one or more disastrous medical
Just as the Catholic Church lied and cheated from top to bottom in an effort
to cover-up the wide-spread paedophilia within its ranks, so the medical
profession protects its wrong doers and woe betide those who try to work
within ethical guidelines or blow the whistle on blatantly damaging
behaviour and treatments.
Without the help of those who have already been through medical trauma or
witnessed loved ones go through it, there would be a far higher incidence of
suicide than there currently is.
But that is not the end of the story for those who abused at every level of
the medical system, infiltrated some of the support agencies rendering them
useless at best and dangerous at worst. We have seen it in ME where one
faction is set against another causing serious internal upheaval.
We have seen the hi-jacking of support groups by funding bodies - mainly
from the pharmaceutical industry, with medical and political backing.
Typically and as an example, on the one hand, the "funding body"
manufactures carcinogenic toxins and on the other hand they produce the
"treatments" for the cancers when they occur. The object of those who
orchestrate such groups is sales and profits. It has nothing to do with
The winners are the drug companies and others with conflicts of interest;
it is they who call the shots and bank the cheques. Their lackeys who front
the groups, are there with hands outstretched, ever ready to do their
master's bidding for a cut of the spoils.
The losers are the many group members for whom the advice on offer,
sometimes represents a long-term to life-long illness/disability, or a death
The major medical journals prefer to white-wash scandals if at all possible,
so when they actually publish concerns about the widespread incidence of
medical error the rest of us had better pay attention.
It is rare for medical articles to discuss the effects that iatrogenic
(doctor caused) disease, disability or death have upon the victims and their
families. The main concern is that those responsible should not be named,
blamed and shamed; that the "error", having occurred, will be a lesson
Unfortunately that is rarely the case for such "errors" are repeated over
and over again, accumulating one victim after another.
Those of us who are already adversely affected by medical treatment, have
learnt that none can afford to ignore the lesson. No one has immunity.
On 7 October, 2000, the British Medical Journal (BMJ) published a paper
entitled "Uncomfortable Viewing" and it had this to say about medical harm.
"It is estimated that 320,000 adverse medical events occur in the United
Kingdom each year. Of these 40,000 result in the death of the patient, a
figure 10 times greater than the number of people dying in road traffic
accidents." It should be noted that these figures are based on hospital
records only and are far from complete.
In the same year, Journal of the American Medical Association (JAMA) had
this to say about doctor caused (iatrogenic) deaths [Quote]: "...225,000
deaths per year constitutes the third leading cause of death in the United
States, after deaths from heart disease and cancer." (Is US Health Really
the Best in the World?, Vol. 284, No.4, July 26, 2000)
It is not so much the odd doctor like Myerson whose self-serving beliefs
make the blood run cold. It is the fact that views of this nature are
shared by so many within his field. The assault upon the brain of a patient
and the immorality of reducing that patient to a vegetative state is bad
enough, but when that patient has had a physical condition misdiagnosed as a
mental disorder, what hope does he have to escape permanent damage?
Regrettably psychiatrists are not renowned for their diagnostic skills and
particularly so when that which is at stake is the maintenance of personal
status, wealth and power. All it takes is a stroke of a pen, to
lobotomise a patient by chemical, surgical, insulin or electrical means.
Those who are seriously damaged or killed along the way, are of no concern
to such "operators".
One would hope it were not so, but unfortunately the voices of those in the
mental health field who practice with due regard to ethics, compassion and
integrity, are rarely heard. The old adage about empty drums making the
most noise is certainly true here. Those falling into this category are
devoid of intellectual thought, logic and common sense. The treatment they
dish out to children who suffer ME, is particularly heinous.
Common complaints are the snatching of children from their homes and sick
beds for incarceration in mental institutions where they may or may not be
allowed parental visits. There desperately sick children are forced to
attempt tasks beyond their physical capabilities; to put it bluntly, many
of them are literally tortured by psychiatric staff.
The opening paragraph of: "THE PSYCHOPATH - The Mask of Sanity" states:
"Imagine - if you can - not having a conscience, none at all, no feelings of
guilt or remorse no matter what you do, no limiting sense of concern for the
well-being of strangers, friends, or even family members. Imagine no
struggles with shame, not a single one in your whole life, no matter what
kind of selfish, lazy, harmful, or immoral action you had taken."
iopaea/psychopath.htm Add stupidity and
arrogance to that definition and see how well the whole melds with the
majority of psychiatrists.
The realization of the philosophy espoused by Myerson became blatant during
the reign of George Bush Jr. in the USA. He and like minded senators pushed
for legislation to test and treat every man, woman and child in the country
for mental disorders. Further, legislation was enacted to protect the
pharmaceutical and allied industries from being sued. To believe that the
large financial stake the Bush family and other senators had and have in the
pharmaceutical industry is a co-incidence, stretches credulity too far.
Bush plans to screen whole US population for mental illness. (BMJ)
Stop Mandatory Psychiatric "Mental Health" Testing
Bush to Impose Psychiatric Drug Regime
A smart smack on the behind or an investigation into allergies and a host
of other possibilities, was largely successful in dealing with the bad
behaviour of children in previous generations. Now Attention Deficit
Disorder and Attention Deficit and Hyperactivity Disorder (ADHD) has become
a diagnosis pinned to a huge percentage of children, particularly in the US
where teachers have been trained to diagnose it and to insist parents take
their children to a psychiatrist for treatment.
(Quote):"It is unjustifiable to misdiagnose over a million children with
ADHD. Psychiatry claims ADHD is a serious disease like cancer and our
schools have become a marketing distribution channel for this false data."
(Sheila Matthews, co-founder of AbleChild)
Spearheading this move, were the wealthy and influential who had direct or
indirect financial interests in the pharmaceutical industry. They pushed
to have smacking outlawed claiming that it was abuse. Thanks to them, bad
behaviour in children is no longer regarded as a normal nuisance to be
endured and dealt with as best able.
We are all different; we are individuals. There will be the bad, the good,
those who respond to a smack and those who don't. It is not logical to lump
all "bad behaviour" behaviour together and label it as a mental disorder to
be "treated" by dangerous, toxic and highly addictive chemicals. What does
that say about adults?
In many places, parents who refuse to expose their children to such drugs,
are threatened with expulsion of the child and/or their own prosecution for
Do those who go through the psychiatric hoops at a personal level ever
wonder how the doctor knows they have a chemical imbalance in the brain when
no blood, or tissue has ever been taken and tested for it? Do they ask
themselves how the doctors can be so sure it will take a month for the drugs
to "kick in"? Answer: It will probably take that long for the patient to
Pregnant women in particular were and are targeted and once they are
addicted, new born babies start life enduring the agonies of drug
withdrawal and the neuronal damage that that process inflicts.
If this is not fulfilling Myerson's cherished dream, what is?
Almost every unpleasant event one can think of, has escalated from
occasional to epidemic proportions during the last decades. It takes very
little investigation to discover that psychiatric treatment is involved in
most of these cases. Apart from the induced aggression that triggers school
yard and work place massacres, there are side effects involving the central
nervous system as well as heart failures that have killed a number of
children and adults alike.
Violence and Psychiatric Drugs.
The Link Between Psychiatry, Drugs and Suicide.
What You Should Know About Psychiatry and Psychiatric Drugs.
Psychiatrists sit in judgement on the characters and behaviours of others
often resulting in catastrophic outcomes for innocent people. Yet,
amongst its practicing members, this branch of medicine alone harbours more
irrational behaviour and criminals than any other. Broken
marriages/relationships, suicides and addictions are commonplace; there is
no shortage of cases of sexual abuse of patients including children, and
fraud in billing practices etc.
Here in New Zealand, the psychotic behaviour of psychiatrist, Colin
Bouwer, as he plotted and carried out the murder of his wife has recently
been dramatised - probably because he is nearing the end of his prison
sentence. It is a story of arrogance, stupidity, manipulation and more.
Once again I emphasize the word "stupidity" for doctors are generally
considered to be amongst society's most intelligent citizens.
Bouwer's stupidity was such that he lectured students on the art of
committing the perfect murder and then went on to "prove" it by putting it
Featuring prominently in this sad sage, was a female colleague with whom
Colin Bouwer had had an affair and at his sentencing, she vowed she would
wait for him. The prospect of a long wait lost its appeal apparently for
within a few weeks, she took off to greener pastures with a new lover.
What personal qualities do such people have that could possibly qualify them
to judge the behaviour of others?
The final paragraph in a report published by the New Zealand Herald, put
the situation in a nutshell.
"It is chilling enough when a husband poisons his wife, and watches her
suffering, with such cunning premeditation. There can be no greater personal
betrayal. But it is a public betrayal, too, when that man is also a doctor
with that profession's power over life and death, a power Colin Bouwer so
The Colin Bouwer case: a fatal betrayal
When it comes to ME, the behaviour of the psychiatrists and GPs who follow
the Wessely theory, is no better. They may not blatantly carry out the
deed, but every ME sufferer who, in utter despair, has taken his or her own
life, did not commit suicide. They were murdered.
It was and continues to be the influence of those who preach mental disorder
for it is their false judgments that cut off medical and financial help. It
was and continues to be their actions that forced the blade to cut, the
noose to choke and the drugs to stop the functioning of the heart and lungs.
And like all psychotics, they simply couldn't care less.
Medical torture has been kept under wraps but during the last years,
information on this shameful subject has the headlines. The following is a
quote from: The Lancet,
0)X0242-5> Volume 357, Issue 9268, Pages 1609 - 1611, 19 May 2001.
(Quote): "Torture still exists today. Modern torture is becoming more
scientific, often with doctors' help or complicity. Anniversaries of
anti-torture declarations are proudly celebrated despite the fact that
torturers are still at work. Explanation of the original function of torture
will clarify why doctors have been involved in torture since the 16th
century and how the former role of doctors differed from their present
participation in torture."
Chemical torture for the political dissident is identical to the chemical
"treatment" of those deemed to be mentally disturbed, be they infant or
octogenarian. Ingested chemicals do not generally leave visible bruises or
Wikipedia describes it this way:
Medical torture (also known as a medical interrogation) describes the
involvement and sometimes active participation of medical professionals in
acts of <http:>
Torture> torture, either to judge
what victims can endure, to apply treatments which will enhance torture, or
as torturers in their own right. Medical torture may involve the use of
their expert medical knowledge to facilitate
Interrogation> interrogation or
Corporal_punishment> corporal punishment, in
the conduct of torturous
Human_experimentation> human experimentation
or in providing professional medical sanction and approval for the torture
of prisoners. The term also covers torturous scientific (or
pseudo-scientific) experimentation upon unwilling human subjects.
The above barely scratches the surface of what is called medical "error".
As already mentioned, such error can range from genuine mistakes to criminal
offences. Doctors who carry out acts which would land a lay person in
prison, rarely get as much as the proverbial slap on the wrist
Lack of funds is the common excuse for poor service but the truth is that
the profession creates almost half of its own business through "error". It
is left to the unaware tax payer to pick up the tab and clean up the mess.
The system needs to change. Doctors need to be held accountable and for
their own protection, patients and/or their families need to be alert and to
ask questions. If the doctor 's response makes you feel like a fool,
consider who the fool was in the case of the farmer with swine flu.
Finally, we cannot afford to ignore the BMJ when it states: " .the more
closely we examine patient care, the more error we find. No setting is free
from hazards and no specialty is immune, and patients are at risk no matter
what their age, sex or health status." ("Epidemiology of medical error"
British Medical Journal, Volume 320, 18 March 2000.)
18 August, 2010
I wish to express my sincere appreciation to those within the medical
profession who do their utmost to live up to the oath they took at the
beginning of their careers. We have seen many face career-destroying
retribution for so doing.