Saturday, June 25, 2011
Thursday, June 23, 2011
Ellen Goudsmit makes a good point -- those of you who are inclined to write over-the-top, emotional responses do damage to The Cause. That sort of thing adds to the notion that we're just a bunch of hysterical women with mental problems rather than a physical ailment.
Wednesday, June 22, 2011
Tuesday, June 21, 2011
"Insurance systems ARE socialized systems, except they don't cover everyone and allow a corporation - an entity that neither receives nor provides the medical treatment - to skim a profit off the top. In what sort of twisted mind is that the rational way to provide medical care? ... Health care is not cable TV and cannot be solved with these over-simplified market solutions. Anyone who tells you otherwise is a liar, a fraud, or a charlatan - and perhaps a moron."
Monday, June 20, 2011
June 08, 2011 05:00 PM Eastern Daylight Time
WASHINGTON--(BUSINESS WIRE)--A new Web-based television program aims to shine a light on Chronic Fatigue Syndrome, sometimes referred to by patients as "the living death" disease. The disease also is known by its old name – and the one favored by many patients – myalgic encephalomyelitis.
"In more than 50 years of reporting, I've never experienced so many people so misunderstood and abandoned by society and many doctors. I've worked on three continents and reported from around the world, but never have I had a response like the one I've had from writing about M.E./CFS"
The program was conceived by Llewellyn King, a Washington columnist and executive producer and host of "White House Chronicle" and Deborah Waroff, a New York writer and security analyst, who has suffered from the disease for 22 years.
"This is a terrible, debilitating and essentially lifelong disease which, like AIDS, suppresses the immune system. Our program has three objectives: to comfort the suffering; to change attitudes among physicians and medical institutions, and to implore the government to provide critically needed research funds," Waroff said.
An estimated 1 million Americans are so severely impacted by the disease that for months and years they are house-bound. Worldwide some 17 million have lost the ability to lead normal lives and work.
Often those who have suffered total physical collapse are ostracized because of bigotry and ignorance. Institutions, like Britain's National Health Service, treat M.E./CFS as a psychiatric disease, even though patients are in great physical pain.
The disease knows no economic, geographic or social boundaries. Author Laura Hillenbrand is the best-known American victim.
"In more than 50 years of reporting, I've never experienced so many people so misunderstood and abandoned by society and many doctors. I've worked on three continents and reported from around the world, but never have I had a response like the one I've had from writing about M.E./CFS," King said.
The first program is an interview with pioneering M.E./CFS doctor Derek Enlander.
White House Media LLC Llewellyn King, 202-662-9731 firstname.lastname@example.org