"I hope to create an understanding that
Saturday, April 2, 2011
"I hope to create an understanding that
Friday, April 1, 2011
Thursday, March 31, 2011
Wednesday, March 30, 2011
"For those of us in primary care medicine who have devoted much of our working lives to developing empathic relationships with our patients, research findings of improved patient outcomes among the more empathetic physicians is very gratifying indeed," said one of the study's authors, Fred Markham, MD, a family physician and professor in the Dept. of Family and Community at Thomas Jefferson University Jefferson Medical College in Philadelphia.
In a prepared statement, he said, "We have long believed in the importance of empathy, and finding measurably better outcomes lends support to our attempts to nurture empathetic medical students and residents who will pursue careers in every kind of medical and surgical specialty."
If a physician is more empathetic, it can lead to better understanding and trust between the doctor and patient, said lead study author Mohammadreza Hojat, PhD, a research professor of psychiatry and human behavior at Thomas Jefferson University.
* * *
There are two types of doctors: those who got into it to help people and those who got into it for the money. I've had both kinds. The ones who were only in it for the money wrote down the first diagnosis that came to mind (if you're tired, you're automatically depressed, case closed, no reason to do more blood tests). Those who were in it to help people listened carefully to the symptoms, asked questions to clarify, and were willing to do every blood test under the sun if that would lead to correct diagnosis.
So it's no surprise to me that empathetic doctors, who aren't just spouting nonsense like "all divorced women are depressed", produce better outcomes, because they're not handing off pills that have nothing to do with the illness the patient actually has.
ATTENTION YOUNG PEOPLE AROUND THE WORLD
Speak Up About ME invites you to add your voice!
May 12th is ME/CFS Awareness Day. On May 11, 2011 as part of my testimony at The Chronic Fatigue Syndrome Advisory Committee (CFSAC) in Washington, I will speak on behalf of those who became ill with ME/CFS before the age of 22 years.
If you had early onset ME/CFS (no matter where you live), you can participate by giving me your name (real or alias) , age at onset, age at diagnosis, current age and the country you live in.
Please send your information to
HYPERLINK "mailto:SpeakUpAboutME%40gmail.com" SpeakUpAboutME@gmail.com
Please note that by giving me this information, you are giving me permission to use this information in my CFSAC testimony and at any other time when relevant to ME/CFS.
- Send CFSAC a note (no more than five typed pages in length).
Explain why what happens in the US (in this case, about ME/CFS) matters to people in other countries.
Public comment to be given as printed material to CFSAC members for review, needs to be sent to the Executive Secretary at HYPERLINK "mailto:firstname.lastname@example.org" email@example.com, prior to close of business on Monday, April 18, 2011.
Watch the livestream (follow links from here http://www.hhs.gov/advcomcfs/meetings/index.html ) of the proceedings on May 10th and 11th (May 11th is Speak Up About ME). Watch the archives of CFSAC meetings. Encourage others to watch the livestream and view the archives. We have been told that viewing numbers (even of the archives) are taken very seriously. **
* Please note – submissions should be respectful. Constructive suggestions are especially useful. (Antagonism doesn't move us forward.)
**Also please note – on the afternoon of May 11th, participants (who are able to) will be meeting with congressional officials
"Members of the public not providing public comment at the meeting who wish to have printed material distributed to CFSAC members for review should submit, at a minimum, one copy of the material to the Executive Secretary, at HYPERLINK "mailto:firstname.lastname@example.org" email@example.com, prior to close of business on Monday, April 18, 2011. Submissions are limited to five typewritten pages. If you wish to remain anonymous, please notify the CFSAC support team upon submission of your materials to HYPERLINK "mailto:firstname.lastname@example.org" email@example.com."
"Speak Up About ME, Invisible No More!" - Let's Make This HAPPEN!!
Lydia E. Neilson, M.S.M. , FounderChief Executive OfficerNATIONAL ME/FM ACTION NETWORK512 - 33 Banner RoadNepean, ON K2H 8V7 CanadaTel. 613.829.6667Fax 613.829.8518Email: firstname.lastname@example.orgNATIONAL ME/FM ACTION NETWORK - HOST OF THE IACFS/ME INTERNATIONAL RESEARCH & CLINICAL CONFERENCE - OTTAWA, CANADASEPTEMBER 22 - 25, 2011Visit: www.iacfsme.org
Nmefman-contacts mailing list
On March 24, 2011, the Equal Employment Opportunity Commission (EEOC) announced that it has approved final regulations interpreting the Americans With Disabilities (ADA) Amendments Act. The announcement marked the culmination of more than two years of debate among the EEOC, employers and employee interest groups concerning the scope and interpretation of the ADA Amendments Act.
the final rules eliminate the list of conditions that automatically render a person disabled and clarify that an individualized assessment is needed to determine whether a person is disabled under the law. However, in guidance concerning the final regulations issued in "Questions and Answers" format by the EEOC, the agency continues to take the position that "Certain impairments, due to their inherent nature . . . will virtually always be disabilities."
Monday, March 28, 2011
Sunday, March 27, 2011
This difference has been explained as a "shift" in the genome attributed to time and distance. That is, over time viruses tend to mutate slightly, and it is not exceptional for viruses from one geographical region (Lombardi/Mikovits on the West Coast) to differ slightly from those in another region (Lo/Alter, East Coast). This was seen, for example, in the 2009 swine flu epidemic where over 50 different strains of H1N1 were identified from Hong Kong, Singapore, Malaysia, etc.
Now, here is the most intriguing part of our Hemispherx meeting. It took hundreds of scientists at multiple sites ten years to map out the 3 billion nucleotides in the normal human genome. Dr. Carter introduced us to Howard Urnovitz, CEO of Chronix Biomedical. Urnovitz revealed that his research group is able to map genomes at a very rapid pace. He expects that in the near future, Chronix will be able to map your entire genome in under six hours and for probably less than a $100 fee. This is StarTrek medicine!
Urnovitz went on to explain that when apoptosis occurs, chimeras are spilled into the blood stream and can be extracted easily by his laboratory. When his lab examined the genomes of persons with CFS they found chimeras made up of XMRV genes (but oddly missing their LTR regions). .
This technology is wonderful news for PWCs because if XMRV or MLV can be clearly shown to cause CFS, then we will have an inexpensive and unique marker for the disorder!
The Chronix test is not currently available commercially, but Hemispherx plans to explore the use of this technology in future studies.
These data suggest that subjects who are XMRV+ have an edge in responding to Ampligen, and that Ampligen may be a treatment for CFS.
Because AMP-511 is a treatment protocol and not a drug study, insurance may cover some or all of the expenses involved.
We owe a great debt of gratitude to Dr. William Carter and Hemispherx Biopharma for developing Ampligen – the only proposed treatment for CFS – and supporting research in CFS for over 22 years. I know that Dr. Carter, his colleagues, and his company have experienced the same kind of humiliation and disdain that all of us involved with CFS have experienced, and it is a testament to their courage and determination that they have endured all these years when they could have abandoned CFS for more lucrative areas.