Saturday, March 12, 2011

In Debate Over Chronic Fatigue, Patients Clash With Scientists - WSJ


Reeves Strikes Again - "It's Your Uterus, Dearie!"


Group-Fantasy Origins of AIDS

Thanks to Heath for providing this:
This is in regards to the debate whether HIV cause AIDS in the 1980s:

Quote: "At an April 23, 1984 press conference in Washington, D.C., Margaret Heckler, Secretary of Health and Human Services, announced that Gallo and his co-workers had discovered a virus that is the "probable" cause of AIDS. This virus was initially named HTLV-III.
That same year, Casper Schmidt responded to Gallo's papers with The Group-Fantasy Origins of AIDS, which was published by the Journal of Psychohistory.
Schmidt posited that AIDS was not an actual disease, but rather an example of "epidemic hysteria" in which groups of people are subconsciously acting out social conflicts. Schmidt compared AIDS to documented cases of epidemic hysteria in the past which were mistakenly thought to be infectious. (Schmidt himself would later die of AIDS in 1994.)"

Friday, March 11, 2011

This should be everyone's Facebook status this week

"It's ironic that people pray for the poor and sick and then complain when the government does anything to help them." -- Wm. Sloane Coffin

How can I lose weight if I have hypothyroidism?

Wednesday, March 9, 2011

A year of antiretroviral therapy

"Under the best of circumstances, the drugs available to us based on in vitro studies (reverse transcriptase inhibitors and an integrase inhibitor), are an incomplete solution, as they can only control early stage replication events. Patients who have been sick for a long time most likely have a large amount of integrated virus cranking out viral product and fueling persistent immune activation. The drugs we have will not affect this, only preventing infection of new cells. Also we do not have a protease inhibitor to prevent assembly of new viral particles. The HIV protease inhibitors were ineffective against XMRV in vitro in the Singh study. XMRV protease is not the same as HIV's."
* * *
So there you have it.  Most other treatments have also worked best for those in the first 5 years of illness, and not for us old-timers. 
I hate to look at it as a life wasted, since I know my advocacy has provided some benefit, but it does look like I'm stuck with the symptoms for the rest of my life, and will "waste" the rest of my life trying to cope with the symptoms rather than being a productive, taxpaying citizen.

Tuesday, March 8, 2011

CFS and Disability Benefits

"Honda must award long-term disability payments to a 47-year-old man suffering from extreme Chronic Fatigue Syndrome, the 9th Circuit ruled, finding that the insurance company's denial of those benefits was "implausible" and "illogical."

Sunday, March 6, 2011

"We're not in Kansas Any More"

A book by Rik Carlson, VT CFIDS