Friday, November 11, 2011

ME/CFS Fundraising Group on ChaseGiving

(Please re-post)

The Chase Community Giving (CCG) Contest is underway, and we are
excited! This is an opportunity for us all to band together and help
some of our small US-based nonprofits to possibly win between
US$25,000 and US$250,000 each! US$3,000,000 will be distributed among
100 charities. In previous Chase CCG Contests, The CFIDS Association
of America, the WPI, and P.A.N.D.O.R.A. have all been winners.

Just to quickly introduce ourselves, we are part of the ME (ME/CFS)
Fundraising Group. This is an international group which was formed to
look for opportunities to help ME/CFS/CFIDS nonprofits raise money and
to support them during fund-raising efforts, as well as networking ME
advocates, group leaders, and organizations to coordinate our efforts.
The current focus is online contests sponsored by large corporations.
We interact through a facebook group (

Faith, from the fundraising group, sent out letters to the eligible
nonprofits asking certain questions to help the ME community
understand the orgs and decide how to vote. Cort Johnson, at Phoenix
Rising, is kindly posting these responses under his article about the
contest (

The fundraising group is composing a list of organizations thought to
be more engaged with the contest, based on the following:
    they have (or are working on producing) a profile at the CCG application,
    we think they are eligible to compete,
    they have (or are producing) a Facebook page (less important),
    they responded to us.

Other than the obvious (eligibility), we are using these criteria as
an indicator that the organization is ready and able to take an active
part in promoting itself to voters and able to complete the
considerable paperwork requirements for CCG (they must do
grant-writing twice).

The ME charities that have expressed interest and submitted the
necessary info to Chase are listed here:
American Association for Chronic Fatigue Syndrome, Inc. (=IACFS/ME)
Chicago, IL
Rocky Mountain CFS/ME and FM Association Denver, CO FB
Cfsknowledgecenter, Inc. Wellington, FL
Wisconsin Chronic Fatigue Syndrome Association, Inc. Sun Prairie, WI
New Jersey Chronic Fatigue Association, Inc. Florham Park, NJ FB

These two groups have expressed interest, but don't yet have their
profiles up on the Chase site:
Massachusetts CFIDS Association, Inc. Quincy, MA
Enterovirus Foundation, Inc. San Francisco, CA FB

Additional groups listed at Chase (but which we don't know to be
engaged with the contest):
CFIDS and Fibromyalgia Self-Help Program Palo Alto, CA
Chronic Fatigue Syndrome Fibromyalgia Org. of Georgia, Inc. Kennesaw,
Connecticut Chronic Fatigue and Immune Dysfunction Syndrome
Association, Inc. Milford, CT
American Fibromyalgia Syndrome Association, Inc. Tucson, AZ (Promotes
research, education, and advocacy for Fibromyalgia and CFS)
CFIDS Emergency Relief Services, Inc. Northport, AL
Chronic Fatigue Syndrome, Fibromyalgia & Chemical Sensitivity
Wilmette, IL
Fibromyalgia Coalition International Mission, KS (Provides support for
persons with Fibromyalgia and CFS)
National Chronic Fatigue Syndrome and Fibromyalgia Association Kansas
City, MO

Smaller groups listed at Chase (but which we don't know to be engaged
with the contest):
Black Hills Chronic Fatigue CFS and Fibromyalgia Syndrome FMS Support
Group Rapid City, SD
Tacoma Gig Harbor CFIDS and Fibromyalgia Support Group Gig Harbor, WA
Central Virginia Chronic Fatigue Syndrome & Fibromyalgia Association,
Inc. Charlottesville, VA
CFSFM Support Group of DFW, Inc. (Dallas Fort Worth) Euless, TX

Doesn't want to or can't take part this year (but listed at Chase):
RESCIND, Inc. Boca Raton, FL
National CFIDS Foundation, Needham, MA
Neuro Immune Disease Alliance, Inc. Agoura Hills, CA (Fund-raises for
Dr. Daniel Peterson's Simmaron Research)
Dr. A. Martin Lerner Chronic Fatigue Syndrome Foundation Beverly
Hills, MI (thought to be ineligible)

As we get status updates on these or any other orgs, we will post them
at the ME (ME/CFS) Fundraising Group ( and at
Phoenix Rising ( ).

Voters should, of course, do their own due diligence to ensure
organizations are eligible (there seems to be some confusion about
this in some cases), are behaving in a sportsmanlike manner, and are
organizations the voters want to support. The application is here: and
the rules are here:

We would like to ask your help in supporting ME/CFS organizations in
the contest. Could you please inform your members about the contest
and ask them and their family members to vote for the best positioned
ME/CFS organizations? We would genuinely appreciate it. And you will
be helping the ME/CFS community!

To vote, you must have a Facebook account, which is easy to set up if
you don't already have one ( Then go to: You must "Like" and
"Allow Access" to Chase Community Giving. That means you will go
unsecure to Chase Community Giving site, so they will know you are an
actual person. (You may need to click the "Like" button several times
throughout the program.) Click on "Chase Giving" at the left side of
the Chase Community Giving page.

To find the charities you wish to vote for, you can do a search for
each charity in the Search Box at the Chase contest site* or simply
use the URLs provided above, which will take you to the voting pages
for the various nonprofits. Each person gets 10 votes—which must each
be used for a different nonprofit.

Votes can be cast at any time November 8th-22nd, so this is easier
than a daily vote. When you vote, you can make a comment about the
organization, and you can also "Share" with your friends on Facebook
and/or Twitter that you have voted. These are great ways to spread the
word about your support for an organization.

We hope you will be interested in taking advantage of this opportunity
to support ME/CFS nonprofits and the ME community in the Chase
contest. Thank you very much for any help you and the members of your
organization can provide.


Helen Watkinson
Janelle Wiley
Faith Wong
Members, Board of Administrators
ME (ME/CFS) Fundraising Group

* Some groups can be a little hard to find using the search function.
Don't assume they're not there until you try the links above.


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