Tuesday, September 13, 2011

“30 Things About My Chronic Illness ” Meme


30 Things About My Invisible Illness You May Not Know

1. The illness I live with is:  Post-Viral Syndrome/CFS/fibro/exercise-induced asthma/post-traumatic arthritis/chronic bronchitis/migraines

2. I was diagnosed with it in the year: 1988 (PVS/CFS), 2001 (fibro), 1998 (asthma), 1976 (arthritis), 1966 (bronchitis), 1996 (migraines)

3. But I had symptoms since: virus in February 1987

4. The biggest adjustment I've had to make is: leaving my full-time career

5. Most people assume: I'm just too lazy to work ... even when I was still working as close to full-time as I could manage!

6. The hardest part about mornings are: waiting till all systems are up to speed so I can safely get out of bed

7. My favorite medical TV show is: M*A*S*H

8. A gadget I couldn't live without is: laptop computer

9. The hardest part about nights are: trying to get to sleep and stay asleep

10. Each day I take __ pills & vitamins. (No comments, please)  on bad days, a helluva lot

11. Regarding alternative treatments I: have tried a lot of them and most had no effect whatsoever except to lighten my wallet

12. If I had to choose between an invisible illness or visible I would choose: in some respects, I like being able to pass for normal

13. Regarding working and career: despite the stereotype, I DO still work, from home -- from bed if necessary -- on my own schedule

14. People would be surprised to know: I kicked my husband to the curb, he did not leave me

15. The hardest thing to accept about my new reality has been: having to slow down and not do as much as I'd like

16. Something I never thought I could do with my illness that I did was: recover after medical neglect brought me to the brink of death

17. The commercials about my illness: make it look like depression.  As Erik notes, no person with True CFS would get out of bed as quickly as CDC's actress did

18. Something I really miss doing since I was diagnosed is: dancing the night away

19. It was really hard to have to give up: sports

20. A new hobby I have taken up since my diagnosis is: not so much "new" as "more of" -- since I can no longer play sports, I spend more time sitting on my butt doing needlework

21. If I could have one day of feeling normal again I would: go hiking in the mountains 

22. My illness has taught me: patience.  Infinite patience.

23. Want to know a secret? One thing people say that gets under my skin is: "why don't you get a job?"  I HAVE a job -- it's just not full-time -- but just because I work from home does not mean it's not a job.

24. But I love it when people: recognize how much I DO do

25. My favorite motto, scripture, quote that gets me through tough times is:  God answers all prayers; sometimes the answer is No.

26. When someone is diagnosed I'd like to tell them: don't make the same mistakes I did.

27. Something that has surprised me about living with an illness is: how many people who claim to be "Christians" are rude, uncaring, and think "I'll pray for you" is as useful as actually getting off their butts and doing what I've asked them to.

28. The nicest thing someone did for me when I wasn't feeling well was: volunteered to get a few essential groceries and also brought a bouquet of flowers and takeout for lunch when he delivered the groceries

29. I'm involved with Invisible Illness Week because: I'm tired of people assuming that if you don't have a wheelchair, you're not disabled

30. The fact that you read this list makes me feel: like I'm doing something worthwhile


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