Now, of course that was a silly story. But it is exactly how I was treated by the first specialist I saw for this disease. "Self-reported" is an insurance term that is used by British psychiatric "experts" on CFS; and there is a published paper out there about CFS and fibromyalgia that uses the correlation between these diseases and fear of pain to conclude that people who fear pain are "catastrophizers," and "catastrophizing" causes pain. There is a large body of psychiatric research on this disease that is just plain silly.
So don't be surprised if patients are a bit worried about what researchers say about them, or what the government does about them. If you had a badly broken leg and nobody in the medical profession would believe you, you'd be a little cranky too.