Monday, April 25, 2011

A Sentence of ME -- Awareness Week Project


Our project, launched in plenty of time for M.E. Awareness Week (8-15
May) 2011, "A sentence of
M.E.", has a deliberately obvious double meaning: The horrible
experience of this largely
invisible and unpredictable disabling illness that seems to some like a
prison sentence is,
literally, just that for the most severely affected, who are housebound
or bedridden.

So, we are asking people, who are affected by M.E, (Myalgic
Encephalomyelitis), not only as
sufferers but also their carers, family, friends, maybe even doctors and
nurses, doing their
best to care for them, to express how it is in just one sentence, in
order to improve public
knowledge and raise awareness.

You may wish to use your sentence to tell everyone about a single
episode, or about how it is
to endure M.E. day after day, year in year out. It's up to you. And you
can submit as many
sentences as you like. You can do so in your own name or anonymously if
you prefer (say, just a
first name, or a made up name, or "M.E. sufferer, 10 years, London").
We'll put them all on our
website, Facebook, Twitter and M.E. sufferers from all over the world
are invited to take part.

There is a universally recognised International M.E. Awareness Day on
12th May every year but,
for us, every day is M.E. Awareness Day. So, there is no closing date
for this one. Send any
sentences you have to with "A sentence
of M.E." in the
subject line.

[Note: we have sent this letter to a number of newspapers and magazines
in the UK and to other countries that have English language newspapers
but if you would like to make sure that we have sent it to your
favourite magazine or newspaper (or translated into your native language
if you can provide a translation), send us the e-mail address of the
editor or letters page and we'll get it to them.]

Best wishes
Dr John H Greensmith
ME Free For

To read the letter from Dr John Greensmith
and see details of other organisations' plans for M.E Awareness week

Follow us on Twitter!/MeFreeForAllOrg

Join us for a mix of serious and fun stuff on Facebook!/profile.php?id=100000948699086

Dr John H Greensmith
ME Free For All. org

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