Thursday, April 14, 2011

Petition–Change the way media portrays our disease!

once we have signatures on the petition, we can present it to the media along with other literature in the form of a media packet.   The media packet will include:
  • The signed petition
  • An introductory letter to the media
  • Half a dozen case studies with photos
  • A short guide to the different definitions
  • A brief description of some of the most severe symptoms of our disease
  • A comprehensive list of groups such as IMEA, ANIDA, the MECFSForums Wiki, the new CFSUntied Resource Center, ME and CFS literate doctors, and patients that can be used as sources of information.

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