Friday, March 4, 2011

Doctors Need to Know -- Write Letters to Doctors This Week!

Starting March 1, ME/CFS patients are educating physicians around the world of  retrovirus discoveries (XMRV) as well as other biological abnormalities found with this disease. With medical schools and government agencies not fulfilling this role, like so many other matters, patients are doing it themselves.

The campaign will last until March 15. Each patient is sending five letters and scientific documents to five physicians in their local area.

These include:

•National Institutes of Health announcement of their retrovirus findings.

•Press release announcing unique proteins are found in spinal fluid of ME/CFS patients.

•National Cancer Institute announcement of the original study, with Whittemore Peterson Institute and Cleveland Clinic, that showed high level of retrovirus in ME/CFS patients.

•List of top ten biological discoveries in ME/CFS patients, according to Dr. Anthony Komaroff, a professor at Harvard Medical School.

The campaign was organized by PANDORA and CFS Solutions of West Michigan. In January 2011, MCWPA did a patient survey and participating in this project was in the top three choices.  Patients were given suggestions and instructions in the Patient Discussion board.

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