Tuesday, February 22, 2011

PACE trial on CBS News Wednesday (tomorrow)

Katie Couric on the Pace Trial

by XMRV Global Action on Tuesday, February 22, 2011 at 6:52pm

Here is info from PR forum with permission to repost: 

 

ALL HANDS ON DECK!

 

I've been told by 2 people that Katie Couric will be reporting on the UK PACE trials tomorrow on CBS Evening News. This will be the first national evening news report I've seen in years on ME/CFS. 

 

We do not know what angle Katie will take or how balanced her report will be but YOU can try to make it more balanced. Write or call CBS Evening News tonight or tomorrow and tell them your concerns about the PACE trial. In particular, share your non-improvement or deterioration with graded exercise therapy or cognitive behavioral therapy. Tell her you do not fit the Oxford criteria (which is not used by the majority of ME/CFS researchers and stresses fatigue without the specific inclusion of other symptoms), you have more symptoms than just fatigue, and therefore, the PACE results do not apply to you. 

 

Refer her to ME/CFS researchers like the Alan/ Kathy Light at the Unversity of Utah, Dr. Leonard Jason (DePaul University, Chicago), Dr. Nancy Klimas (the University of Miami), Dr. Chris Snell (University of the Pacific, California) to talk about what happens biologically to ME/CFS patients when they exercise.

 

Go team! [cheerleading icon here]

 

CBS Contact info:

[Note: even if the story gets moved to another day, at least CBS will be left with a story they might follow and this is a chance to counteract the damaging media reports we have already encountered]


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