Saturday, September 18, 2010
Zoltan Rona M.D. recently released a book called: Vitamin D: The Sunshine
This is an excerpt of my review of the book, reproduced for the benefit of
anyone supporting and promoting the use of the Marshall Protocol for M.E.
(or any disease):
'The best part of this book, for me, was his two page section talking about
the unscientific nature of the 'Marshall Protocol.'
Zoltan Rona M.D. writes, 'I have witnessed a lot of crazy treatments over the past 30 years, but none are as abusive as the Marshall Protocol. This protocol is not only illogical but also downright dangerous. At best, it can be labelled as a pretence of scientific thought.'
Rona goes on to talk about the fact that 'Dr' Marshall is in fact NOT a
medical doctor, but is an electrical engineer! He explains that the
protocol, which promotes attaining very, very low vitamin D levels and
taking antibiotic drugs long-term, is 'damaging to one's health and can lead to death.'
He advises anyone that is currently following this dangerous and illogical
protocol to 'get off it immediately.'
The Marshall Protocol has given so many very ill patients false hope and
left them even sicker than when they began it, and also risked their lives.
So three cheers to Rona for including some serious warnings about it in his
book. I hope so much they will be heeded by those following the protocol and
those aggressively promoting it to others.This pseudo-scientific 'treatment'
has caused ENOUGH harm.'
Read the full review here:
Read more about vitamin D and M.E., here:
Read more warnings from HFME (and others) about the Marshall Protocol in the
'Treating M.E.' paper:
Best wishes everyone,
The Hummingbirds' Foundation
for Myalgic Encephalomyelitis:
We estimate that vitamin D deficiency is the most common medical condition
in the world. Dr Michael F. Holick, Vitamin D expert.
Vitamin D is cholecalciferol, a hormone. Deficiencies of hormones can have catastrophic consequences. Dr William Davis, cardiologist.
Vitamin D deficiency is an unrecognized, emerging cardiovascular risk
factor, which should be screened for and treated. Vitamin D is easy to
assess, and supplementation is simple, safe, and inexpensive. James H.
O'Keefe MD, cardiologist and Director of Preventive Cardiology, Mid America
Heart Institute, Kansas City, Missouri.
Friday, September 17, 2010
Thursday, September 16, 2010
"I grew up in India, and doctors there were looked up to as being next to God, and they knew everything and could cure you," Kulkarni says. "What I found out is that even though I like my doctors, I don't have to take every recommendation they give me. I can do my own research."
Srinivasan, the physician who encouraged Kulkarni not to give up, says sometimes doctors don't know about new, cutting-edge treatments being used by other physicians.
"Some doctors are more out-of-date or up-to-date than others," says Srinivasan, an associate professor of medicine at UC-Davis Medical Center who does research on shared decision-making between doctors and patients.
"I get a lot of good ideas from patients," he says. "One of the things we have to do as physicians is to listen to our patients."
* * *
That last sentence has to be taught in every medical school. I knew what was wrong with me, because I'd been diagnosed by a specialist, and I knew what could be done for it. The doctors I dealt with pretended to listen, then wrote down what they wanted to write, and changed my diagnosis to what they wanted to treat. I knew more about my body and my illness than any of the doctors I dealt with at first, yet none of them were willing to listen to me. That would have made all the difference.
Wednesday, September 15, 2010
My blog had a major hiccup and has had to be relocated. Please visit me at
My written testimony to the October CFSAC meeting has been posted at:
Sorry for the trouble, and thanks for following!
Tuesday, September 14, 2010
Ecclesiates says there is a "A time to every purpose under the heaven". I
suggest that our time is now.
ME/CFS has been ignored and kicked to the side of the road for decades.
Twenty-five years later - long after it has been shown to afflict at least a million people in the US and inflict billions and billions of economic losses annually in the US - it still receives amongst the lowest amount of funding of any disorder. Chronic illnesses that effect fewer people and cause less damage get hundreds of millions of dollars a year in funding while we get a few million a year...droppings from the NIH's table.
But now XMRV and the WPI have handed us a unique opportunity that could allow us
to make a huge difference in how this disease is funded. But this window of
opportunity may not be open in 4 months.....NOW is the time to act.
Find out why and how here:
2010 Webinar Series Update
CFS & The Viral Connection
Guest Speaker: Dr. Anthony Komaroff
Thursday, September 16, 2010
12:30 PM Eastern Daylight Time
Because some cases of chronic fatigue syndrome (CFS) begin with a flu-like infection, several viruses and other infectious agents have been studied as possible causes of CFS. Although none of them have yet been proven to cause CFS, several have been associated with CFS, and the development of CFS following infection with several infectious agents has been well documented.
The October 2009 publication of the paper in Science linking the gammaretrovirus XMRV to CFS is the subject of intense scientific inquiry and debate. The August 2010 paper published in the Proceedings of the National Academy of Sciences associates a related, but different, group of gammaretroviruses with CFS. Yet, most doctors and researchers who think that infectious agents can trigger CFS believe it is unlikely that a single infectious agent will explain all cases.
Join CFS researcher and clinician Dr. Anthony Komaroff of Harvard Medical School and Brigham and Women's Hospital for an exploration of some of the infectious agents and illnesses connected to CFS, including Epstein-Barr Virus (EBV), Human Herpesvirus (HHV)-6, Q-fever, Ross River virus, Lyme Disease, Parvovirus, Borna disease virus, Influenza A (H1N1) virus (swine flu), retroviruses, enteroviruses and mycoplasmas.
Our webinar series continues on Tuesday, Oct. 5 Scientific Director Dr. Suzanne Vernon will lead a discussion with researchers Gordon Broderick, Kathy Light and Dikoma Shungu about how the Association's research program can help secure additional funding and accelerate uncovering promising discoveries for the field. Register now for Expanding Research: Building On Your Investment. https://www1.gotomeeting.com/register/558875312
Tuesday, Oct. 21, join internist Dr. Morris Papernik of ProHealth Physicians Group and Hartford Hospital in Hartford, Conn., for a discussion of common comorbid conditions in CFS -- illnesses or disorders that are present in addition to a primary disease or disorder. https://www1.gotomeeting.com/register/892276977
On Thurs., Nov. 11, join Dr. Lucinda Bateman, founder of The Fatigue Consultation Clinic in Salt Lake City to learn some strategies to enhance communication with your medical team and avoid leaving the doctor's office feeling frustrated and depressed. "DOC TALK: Communicating with your health care team about CFS." https://www1.gotomeeting.com/register/303014216
We've posted the recording, (http://www.youtube.com/watch?v=5iF30TVLaRE) slides (http://www.cfids.org/webinar/slides-090110.pdf) and written material (http://www.cfids.org/webinar/cfsinfo2010.pdf) for our most recent webinar on "Managing Orthostatic Intolerance," by Dr. Peter Rowe. You can find links to all the past webinar programs at http://www.cfids.org/webinar/series2010-past.asp.
Monday, September 13, 2010
Sunday, September 12, 2010
To all my online relationships, with love!