Wednesday, October 13, 2010

Survey on CFIDS/ME -- anonymous questionnaire

Apologies, wrong link. This is the correct one:

-----Original Message-----
From: Herman Salton
Sent: 13 October 2010 21:45
To: ''
Subject: NOT: International Survey on CFIDS/ME - invitation to fill in anonymous questionnaire
Importance: High

Dear All

I am a researcher preparing a book on CFS/ME/CFIDS and I am trying to get as many experiences from CFS patients as possible, with the aim of giving voice to them in the book. I was wondering whether any of you could help?

I have already gathered several experiences from the Spanish-speaking, French-speaking and Italian-speaking world, with the aim of showing in the book that the experiences/problems faced by patients are very similar throughout the world, and I would be keen on gathering experiences from the US as well.

I have developed a questionnaire in several languages (attached please see the English version) and I was wondering whether you would be willing to fill it in and distribute it as widely as possible? I have explained both the questionnaire and the reasons behind it in the document. The questionnaire is anonymous and also be filled in online at 

I should also point out that I myself suffer from CFIDS, so I obviously have a very strong interest in this matter and no interest whatsoever in speculating on other fellow sufferers. I only want to raise the awareness of this very insidious disease and, since I am still able to write and I am an academic, shake up a bit the medical establishment in the process!

Thank you very much in advance for your help and please do not hesitate to contact me, should you need further information.

With my warmest regards and very best wishes for your health!


Dr Herman Salton
BA (Italy), MPhil (Oxford), PhD (Auckland)

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