Friday, October 1, 2010

Help Wanted -- Quackologists Need Not Apply

Kati got fed up with the lack of adequate medical care.  So she posted an ad on
Craigslist.  I think this is just stunningly brilliant!  What a great Commando
Advocacy tactic!  Free, easy, takes 5 minutes. 
Tuesday, October 5, is one week before the kickoff of the CFSAC meeting. 
Wouldn't it be cool if we could all put ads in our local Craigslists on that
day, and then send a press release out announcing what we've done?
Anybody game?
New blog at

Thanks, all!  And thanks Kati!
[email protected]
[email protected]
* * *
Unfortunately, the quacks don't see themselves as quacks. 
When my long-time doctor died suddenly, I went to a respected local medical group advertising "innovative treatment".  Which is what CFS needs, right?  Their ads reassure the patient that the PCPs have hundreds of specialists they can and do consult with.  What they don't tell you is that not one of these hundreds of doctors knows that anti-depressants are useless against True CFS.
They repeatedly assured me that they are the doctors, they know what they're doing, and I went along with it for a while until I realized that they were intending to prescribe every one of the 300 available anti-depressants before they acknowledged that maybe what I had was not depression.  Then, over their objections, I enrolled myself in a clinical trial of sleeping pills, because what I really needed was something to help me sleep through the pain.
And when the sleeping pills helped, the quacks STILL didn't see that they were doing the wrong thing for me.  They came up with all sorts of excuses why anti-depressants, not sleeping pills, were the correct treatment.

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