Saturday, October 16, 2010


"CFS breaks many of the rules health care providers are taught about how the body works in response to exercise." CFS patients are trapped in an alternate universe where exercise is not just difficult, but actually makes them sicker.
"University of the Pacific uses an objective measure – the patient's heart rate – to help patients be physically active without causing PEM
"Stretching and range of motion exercises can be implemented first, but the patient's heart rate must remain below the target AT. Once these activities are well tolerated, a patient may experiment with short-duration (less than 2 minutes), low intensity interval training. Again, the heart rate must stay below the target AT, and each interval must be followed by adequate rest."
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I've had a judge tell me that I cannot have CFS because I still have muscle strength.  I've been doing stretching and resistance exercises all along to make sure that when I go into remission, that's one less thing that I have to build back up.   There are exercises that you can do lying down when you're confined to bed; the key is to find the ones that work for you.
Nowhere in the CFS diagnostic criteria does it say "muscles turn to jelly".  That patients are deconditioned is a myth propagated by the medical community so they can play Blame The Patient instead of seeking out the real reason for the patient's feeling of dis-ease.
I lack stamina, but not muscle.  I can still lift about the same weight as I did before I relapsed, the difference is that now I can only do it once, not for an hour at a time, and then have to lie down for a while.

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