Wednesday, October 13, 2010

Dr. Deckoff-Jones "it's an outrage!"

 

The whole history of CFS is an outrage!
 
 

2 comments:

angelduty said...

dr jones,thank u for ALL U DO. XX
and from someone who is bedbound,
the internet has been BURNING HOT...on activity.....& WHATS BEING SAID IS " WE are Done"!!!
i have taken on the "system" - 3 times w/ 2-being lawsuits, that changed Laws for people in tx now.
(in THE non-sick-beginning,
-sick(25+yrs-now)
i say this " BECAUSE I THINK IT IS TIME FOR A 'CLASS ACTION LAW SUIT "
ck out this link
http://www.the-scientist.com/news/display/57740/
"Conflicting views over a chronic form of the disease cause some advocacy groups to withdraw from key workshop"
" As Lyme disease experts gather today (11th October) in Washington DC for a two-day scientific workshop organized by the Institutes of Medicine (IOM), a trio of disease advocacy groups have withdrawn their participation, claiming that the meeting is biased.
After "much deliberation," the groups -- Time for Lyme, the Lyme Disease Association (a national group), and the California Lyme Disease Association -- decided to **WALK** AWAY from the meeting, arguing that organizers are not presenting enough information about the possibility that the disease can be chronic, and requires a long-term regimen of antibiotic drugs.
me-being so foced on me, that i have not seen much w/the Lyme groups.BUT,NOW,that i have, I AM SO IMPRESSED ON THEIR'SO-CALLED STRUCTURE'...really together, & TELLING TRUTH related to these viruses & bio-weapons links.
so, as i say, " The Truth WILL, Prevail"
Thank u for sharing -TRUTH xx
(ps-their meeting is also rt now ? )
ref: " As Lyme disease experts gather today (11th October) in Washington DC for a two-day scientific workshop organized by the Institutes of Medicine "
something stinks here ....
Blessing's to u & y'r family.
marie moore


The Lyme Disease Association (a national group),& the California Lyme Disease Association --


Read more: Debate dogs Lyme meeting - The Scientist - Magazine of the Life Sciences http://www.the-scientist.com/news/display/57740/#ixzz12JLEvaa8

Read more: Debate dogs Lyme meeting - The Scientist - Magazine of the Life Sciences http://www.the-scientist.com/news/display/57740/#ixzz12JKqf3X0
http://www.the-scientist.com/news/display/57740/

Joanne said...

The IOM meeting was very interesting despite the bias selecting presenters the science shone through ie Lyme Disease is a relapsing Borrelia, tests are not reliable, diagnosis should be clinical and treatments may be long.
The whole thing was videocam link here
http://www.tvworldwide.com/events/iom/101011/default.cfm?id=12874&type=flv&test=0&live=0

Interesting how often ME/CFS was referred to during this workshop two doctors referred to a very high percentage of their ME/CFS patients found to have Lyme Disease but then most of those best doctors in Lyme and ME/CFS recognise that shame the ME/CFS charities don't but they will one day.