Friday, October 8, 2010

The Apprentice: ME/CFS

*The Apprentice : ME Carer Style*
*Greg Crowhurst Oct 8 2010*
(permission to repost)

It 's  a format that is screened all over the word. A TV show where a group
of incredibly ambitious  20 /30 somethings try to convince a wealthy
business man to take them on, as an "apprentice"  for a 6 figure salary.

I wonder what the show might be like from an Severe ME Carer perspective :

" I am unique." : I will work for nothing, 24 hours a day, seven days a

"I am a go-getter." : I will take on the full force of the Global Medical
Insurance Industry that is doing all it can to deny you recognition and
treatment .

"I make things happen." : I will spend a whole day, helping you get from bed
to chair.

"I am not all talk... I can manage a team of people, total strangers even,
because I am feisty and have attitude." : I will find a way to work with
other stressed-out and incredibly ill people with ME , and other Carers, in
order to make  things happen for you, like a doctor's visit.

"Caring  is the new rock 'n' roll and I'm Elvis Presley" : I will never
cease, even after decades, to try and think to ways to ease your pain, to
bring you some comfort, to search for a things that might help you get
through another day.

"For me caring  is about hard-work, attention to detail, being willing to
make mistakes and learning from these mistakes." : I will get it wrong,
often, because you are so sound sensitive, so touch, so light sensitive, so
tormented, so close to screaming in agony, even so  I will try and learn the
best way to flow with your tiny scrap of energy.

"I knew I would be selected, not to sound big-headed... I've succeeded in
the companies I've worked for because I work hard and I'm honest." : I will
use  all my life experience, professionalism, learning , every ounce of
creativity, every single talent I possess, to deal with , to cope with, to
help you get through, second by  second , the unspeakable , never-ending
torment that you are in.

"I'm at the top of my game." : I love you more than ever, I have grown
immeasurably as a person, I have come to learn what is truly important, I
live now in six-figure moments.
* * *
Kudos to Greg, and to all the other healthy spouses who've stuck around.

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