Friday, September 17, 2010

CFSAC -- October 12-14, 2010

The next CFSAC meeting will take place on October 13-14, 2010.  A "Science Day" on October 12 will precede the meeting.  More information is located at the CFSAC website located at http://www.hhs.gov/advcomcfs.  
 
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With everything else going on with the WPI Grand Opening, I spaced alerting my readers that written testimony is due 30 minutes from now.
 
But you can start working on your written testimony for the next meeting.  They say you have a five-page limit.
 
And those of you who live nearby can attend meetings in person.  You can ask for a time slot to offer a few minutes of live testimony about how CFS affects you, what the Advisory Committee should recommend, etc.
 
I wrote on behalf of the members of the CFS Facts support group and the CFS Facts Facebook page
Facebook | CFS Facts so you needn't feel guilty if you didn't get your testimony in this time. 
 
I started with a reminder that it's almost exactly a year since the XMRV article in Science magazine, but absolutely nothing has changed for patients -- we're still being verbally abused/dismissed/untreated because the research findings don't get down to the front lines.

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