Monday, July 19, 2010

PANDORA wins $20,000 Grant

Hopefully, this causes people at Chase to look into what PANDORA does and to learn about NEIDs.
 
BRAVO!!!!
 
P.A.N.D.O.R.A.- Patient Alliance for Neuroendocrineimmune Disorders
Organization for Research & Advocacy, Inc - Wins a $20K Grant on
Chase Community Giving


Coral Gables, FL, July 17, 2010 --(PR.com)-- P.A.N.D.O.R.A is pleased
to announce that it has been officially notified by the sponsors of
Chase Community Giving as one of the winners of a $20,000 grant award
on their 2010 charity giveaway. P.A.N.D.O.R.A. ranked number 162, on
the top 200 charities in the entire country competing for the top
200. At the end of the contest, P.A.N.D.O.R.A. had 1,571 votes.

Stephen Silverman, the President of P.A.N.D.O.R.A. stated: "We are
grateful to all who voted for P.A.N.D.O.R.A. Your vote means a lot to
me and to my wife, Marly who suffers with Chronic Fatigue
Syndrome-ME, and Fibromyalgia. Our family knows first hand the
devastating effects of these seriously disabling & debilitating
chronic illnesses."

The contest was held on Facebook and its users voted for thousands of
charities since the contest started in June 15, 2010. "Being placed
on the top 200 small charities by grassroots voting is an
overwhelming endorsement of the unique concept which underlies
P.A.N.D.O.R.A.'s mission: the umbrella of NeuroEndocrineImmune
Disorders (NEIDs), which has a commonality of pathophysiology and
symptomology resulting in substandard personal, and family quality of
life for individuals afflicted with NEIDs," stated Dr. Kenneth
Friedman, Vice-President of P.A.N.D.O.R.A.'s executive board and a
member of the executive board of the IACFS-ME Association.

P.A.N.D.O.R.A. is gratified by the support it has received from the
Neuroendocrineimmune Community expressed as votes in the 2010 Chase
Community Giving Program," added Sandi Lanford, President and Founder
of the Lanford Foundation, Lifelyme, Inc.

Marly Silverman, the founder of P.A.N.D.O.R.A. shared that "Although
our community is composed mostly of disabled individuals whose
illnesses are difficult to diagnose and difficult to treat, and who
often feel unfairly disenfranchised from most of American life; these
individuals were able to vote in sufficient numbers to place
P.A.N.D.O.R.A. in the winning rankings."

The contest application supporting Chase Community Giving engaged
2,619,718 users on Facebook. Veny Musum, the Chairman of the
NeuroEndocrineImmune (NEI) Center™ Project and a member of
P.A.N.D.O.R.A.'s board stated that "The interaction of our members
with our team on Chase Community Giving on Facebook, on Tweeter and
on LinkedIn, as well as on Aboutme-cfs.org, created for the first
time a viable tangible awareness through social media tools, of the
plight of individuals with NEIDs."

"The commonality found on neuroendocrineimmune disorders means that
advances made in the understanding or treatment of one of these
illnesses will increase our understanding and/or treatment options
for the other related illnesses," shared Lesley Fein, MD, a leading
respected treating NEIDs physician, and member of the
P.A.N.D.O.R.A.'s NEI Center™ Team.

Neuroendocrineimmune Disorders Demographics and Prevalence
It is estimated that there are in the U.S. 20 million individuals
suffering from disabling, painful and highly difficult to treat
chronic illnesses such as chronic fatigue syndrome, myalgic
encephalomyelitis, fibromyalgia, Lyme disease, multiple chemical
sensitivity, environmental and Gulf War Illnesses. These illnesses in
general affect more women than men. But they also affect children and
the elderly. It crosses the barriers of gender, social status and
ethnic backgrounds. In the U.S. these chronic illnesses significantly
contribute to 75% of all health care costs in the U.S. The CDC has
stated that in the case of CFS-ME, the annual economic impact in the
U.S. economy amounts to $9 billion dollars (CDC).

P.A.N.D.O.R.A. stands behind its meaningful slogan "One Voice, One
Community, One Cause™, expressing the hope of individuals with
different illnesses and from different socioeconomic backgrounds.
P.A.N.D.O.R.A. is propelled forward by this expression of grassroots
support. It will direct the grant winnings to its daily operational
expenses as well as towards the establishment of the first ever
NeuroEndocrineImmune (NEI) Center (www.neicenter.com) and its
comprehensive programs for the complete care of individuals afflicted
by Neuroendocrineimmune Disorders.

About P.A.N.D.O.R.A., Inc- Patient Alliance For Neuroendocrineimmune
Disorders Organization for Research and Advocacy, Inc.
Based in Coral Gables, Florida, P.A.N.D.O.R.A. was founded on July 1,
2002 by Marly C. Silverman, a Chronic Fatigue Syndrome-ME and
Fibromyalgia patient. Its mission is to raise awareness of the plight
of persons with chronic fatigue syndrome-myalgic encephalomyelitis,
multiple chemical sensitivities, environmental illnesses, and chronic
Lyme disease advocating for quality of life issues. P.A.N.D.O.R.A. is
Built on Hope – Strong on Advocacy – Finding a Cure through Research.
For more information, visit www.pandoranet.info - Find us on Facebook
at http://www.facebook.com/PANDORAORG - Follow us on Tweeter at
http://twitter.com/pandoranet

###

Contact Information
P.A.N.D.O.R.A.- Patient Alliance for Neuroendocrineimmune Disorders
Org. for Research & Advocacy,Inc
Marly Silverman
954-629-0976
msilverman@pandoranet.info
www.pandoranet.info

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