Writing letters is good and noble, but the only person who really reads those letters is the editor of the letters page unless there happens to be an unusually large number on a specific piece (which, unfortunately given the energy levels of most of us, is not generally the case). Calling the newspaper/magazine and asking to speak with the writer means he/she has to actually interact with you.
Be polite. Praise when you can (i.e. honey catches more flies than vinegar). Have good data to share. The added benefit of calling is that often you get into his/her contacts book of people to call when there is a story on ME/CFS. (I should also add that this is why giving money to advocacy groups to hire a professional PR person who can wine & dine journalists is very important.)
Personally at this point I think the scandal angle (the CDC or NHS is spending money on psychiatric care while people die) has far more appeal than the "human interest" angle, or in the case of the recent dreadful PLoS One study, playing up the row angle (i.e. "WPI says 'Not so fast!'") will be more productive, but that's just me.
Right. Now that that's off my chest, I'm going to try a bath tonight...
Read about life behind the surface at http://behindthesurface.blogspot.com